Tuesday, June 21, 2011

Throw Me A Lifeline

SOS...I think I'm drowning and I don't know it. Most women are key at multi-tasking, managing and maneuvering it all. I did it in the corporate world and I'm the head chick in charge in my home, but this diagnosis has changed and shifted my power. There is no kryptonite to suddenly increase my capacity for more. My strength and ability to keep pressing comes from my faith in God and his word and knowing that he is with me through it all. I don't know how I would be able to cope or deal otherwise.

The proposed date for the transplant has been pushed back to early next week probably the 27th. Protocol calls for at least 7-10 days post op before she can have a transplant. Somehow I thought I was gaining a week, but quickly realized the 27th is next Monday. There is so much to do and even more to coordinate. There are conditions to follow and schedules to adhere to. I did have a moment of overwhelm and panic, but I know everything is going to be alright. Having said that I'm going to create a quick Facebook group or an email listing and those of you that have said what do you need?, I'll be sending out a list of things 'en la manana'. I'm working on a first come, first reserve basis. If you're free and open to the task at hand, you've got it. I don't really know how else to do it and quite honestly I can't truly gauge it all, but I have to start somewhere. #1 on the Master List is figuring out a way to replace the carpet. It's a health concern for Mireya and will need to be replaced. Where's my fairy Godmother with my 3 wishes? Tell her I've got some wand swinging for her to do.

I spent several hours at the hospital today with Jalen having his Pediatric medical clearance done, meeting with BMT Coordinator and finally completing paperwork and consents. Jalen and I scored big at the lunch carts surrounding the hospital. We walked around eagerly from cart to cart. There's just about every cuisine you could hope for, remember we've spent 24 of the last 35 days in the hospital virtually surviving on Subway, cafeteria food or Chik Fil A. There was Thai, Chinese, Indian, Noodles, Burritos, Caribbean and tons more. We were so excited. Jalen went for lo mein and veggies and I did a veggie wrap. Jalen hopped in the car and said 'this is so good and better than McDonalds or Chik Fil A. Hmmm that boy loves some lo mein.

Mireya is dragging a bit today. We're certain it's because her red count was borderline when we left and perhaps is down a little more today. We'll be back in clinic on Thursday. She'll likely need a boost by then. It's day two of us caring for her line at home and it hasn't been as bad as I thought it would be. The dressing needs to be changed on Friday. I 'really' don't want to do that part, so I may see if I can talk the Hemoc nurses into doing it when we're there on Thursday. It would be helpful to see it done a few more times, so I'll see how many times I can actually just 'see' it done before I actually have to do it.

It's Day 2 of the Fast and we're continuing to pray and believe God. I'm reminded of Matthew 15:28 of the woman whose daughter was suffering terribly and she cried out to God for help. She was persistent in her pursuit of his help, even reminding him of how the most unworthy or the unintended benefit from being positioned in the right place (a crumb snatcher). She refused to be turned away. "Dear woman," Jesus said to her, "your faith is great. Your request is granted." And her daughter was instantly healed. We are continuing to cry out to God. We're persistent, we won't lose hope and we believe Mireya's health will be restored 100%.



  2. Venus I love your strength and your courage to be real with your feelings and your need. My eyes are filled with tears, my heart is heavy not just because of Mireya's situation but because the challenges I face in life seen so minor to what you are facing. My God contiune to bless you and your family and provide you with EVERYTHING YOU WANT AND NEED. I love you and I got your bacck!!!!

  3. Minister Van ~ YES absolutely 100%.

    Maccie ~ thank you for your heart, your love and support. God used you to share a blessing before any of this even fell into our world and I thank you for you open and willing heart.