Tuesday, April 19, 2016
We had yet to determine a diagnosis because at the time only one cell line was in mass destructo. Reya had just received a transfusion the day before to help her platelets bounce back and diminish the amount of bruising present all over her body and in her mouth.
I remember this day so vividly, we knew she wasn't well enough to endure a lot, but we went anyway because we had to be back at the hospital within a day or two for more extensive testing. We enjoyed this day like we had nothing to face. It was the last fun day we had together before our lives were forever changed by a almost three year battle with life threatening illness. It is so hard to watch your child endure something you cannot fix or change. Praying today for so many families....those grieving, those battling and those preparing to fight.
Saturday, May 23, 2015
It has been awesome to spend time with the Partners who have been working over the last few months to raise awareness in the community and helping raise money for Children's Hospital of Richmond @ VCU and Children's Miracle Network. I feel like a Mom-mager coordinating schedules and balancing some great events for #TeamBolton. Some of the fun has included a half-time check presentation from Virginia Credit Union at the last home game for the VCU Rams. We enjoyed meeting the President of the Credit Union and his wife to thank them personally for their generosity. The kids loved seeing themselves up on the jumbo-tron and the super fan even made the shot and our section was chosen to receive free pizza...which was totally winning!!!
Wheel of Fortune's Secret Santa sweepstakes, in which a local winner's charity of choice was Children's Hosptial of Richmond @ VCU for $10k.
Sometimes it is so hard to see beyond the immediate devastation of a situation. Never would we have imagined what the Lord had on the other side of what has been one of the most difficult times in our lives as a family. We are so proud of our children and see it as an honor to serve alongside them in their roles!!!
Thursday, January 29, 2015
We spent the early evening celebrating an amazing honor granted to us by the Children's Hospital of Richmond at VCU. Many of you may remember, in October of last year Quentin and I were at the Q94 studios to share the #TeamBolton story for the Radiothon. At the conclusion of the taping, we were asked for a few minutes of our time by our friends at CHOR to tell us about an Ambassador program for Children's Hospital they wanted to nominate both Jalen and Mireya for. The program brings awareness to healthcare, Children's Miracle Network (CMN) and the importance of supporting Children's Hospitals and programs across the United States.
Every year after a series of nominations 'one' family or 'one' Champion is chosen as an Ambassador to represent his/her state. Jalen and Mireya were submitted in recognition of their ability to brave their respective battles with grace, strength, courage and determination despite and through it all. We continue to be in awe of all they endured over the course of two and a half years to bring us where we are today.
When we received the phone call about a week ago, I pulled over on the side of the road, speechless and in tears....I am so proud to share the 2015 Champions for the state of Virginia are Jalen AND Mireya. Our friends at CHOR planned a super special family celebration for us at The Desserterie to announce and share with the children that they were chosen to represent Virginia this year in this role and capacity. What does this mean??? It means we continue to do what we've done all along...participate in events to support the Children's Hospital and CMN, share our experience and our story. But wait there's more....an Ambassador's Tour. Two trips, one to the White House (the 2014 Champions met and spent time with the President) and a second week long trip to Walt Disney World with approximately 52 other families (one family from each U.S. State and Canada) all together for a common goal. What an amazing opportunity. Here's a little clip of the 2014 Champions and their time together on the tour. Thank you BIG sister Paris (unable to be with us) for dialing in from school for this special occasion.
|News traveled fast via FaceTime to Big Sister|
Thank you to so many that have loved, supported and kept us covered in prayer. We are so honored to be thought of in such a way to be nominated, but even more humbled to be chosen. To God be the Glory!
1 Peter 2:9 But ye are a chosen generation, a royal priesthood, an holy nation, a peculiar people; that ye should shew forth the praises of him who hath called you out of darkness into his marvelous light
Friday, December 26, 2014
We are still in our maintenance phase of treatment and are routinely seen in an auxilliary Children's Hospital clinic in the West End. Since we were at the Main Hospital, we decided to take a trip down to our old stomping ground for a quick visit. It is such a joy to see the smiling faces of people who were such a big part of the process and journey. The entire clinic experience starts with these two ladies and I truly love them both so much!!! Reya was super happy to see Ms. Rachel and Ms. Roz. It was like catching up with family and friends.
We have few additional appointments in the coming weeks to help us assess and determine a plan of action to manage these issues. We are continuing to enjoy the 'new normal', but look forward to 2015 being a year that propels #TeamBolton to even greater places.
Friday, October 17, 2014
We have officially transitioned to the Peds/Hemoc Survivorship Program. Our appointments continue to track every 3 months and will hopefully soon be stretched to every six months beginning in January and then annually for the duration.
Overall Mireya is doing well in the maintenance phase of her treatment. She has some of the common struggles with sun exposure, fatigue, unexplainable stomach and headaches which make it difficult to flow through school days, but she loves learning and is doing exceptionally well in 2nd Grade despite it all.
Quentin and I continue to push through to get all areas of our lives on track and we make a conscious effort, to keep things in perspective, while savoring life in this new place. It has been several months, but it still feels different to exist in a space where you are free to live without major limitations. Simple things give us great joy. I cannot count the number of times there have been tears in my eyes or I've cried relishing the normalcy of a single moment or occurrence in time.
|The Warmth of Sunlight on My Face|
|I'm Not My Hair, BUT I'm Back Where I Started|
Love and blessings always from #TeamBolton!
Friday, April 4, 2014
|Giving the 'Stress Talk'|
I work with an amazing group of people and have never been more excited about this business until now. About 4 weeks ago I was at a Leadership Conference in Dallas when a BIG announcement was made. Let me preface the announcement by saying, BeautiControl has an amazing Foundation, W.H.O (Women Helping Others) www.whofoundation.org that has granted over 5 million dollars to community focused charities and organizations serving overlooked women, children and families. I have seen dollars from the W.H.O. Foundation granted and serve the Richmond area several times over the last 10+ years. I was at a loss for words when BeautiControl unveiled their partnership with the Make A Wish Foundation. I sat in that meeting sobbing as a Wish Family came out and shared their journey to victory over illness. Understanding their plight and knowing first hand how tremendous this is for families made me PROUD of this company I represent. Our collective mission in one month was to share this opportunity with 4,500 people. My personal desire was to do my part to make this happen by sharing it with everyone I could. The reward of going out and working on behalf of 'Paying it Forward' and blessing others for me, was bigger than any other reward the company could give.
Incidentally during a break the day before, I took a detour to a bathroom off the beaten path and ran into this beautiful lady. Obviously, she got the black and coral memo. We chuckled, decided we had to take a picture because what were the odds amongst 2000 women you would 'happen' to run into someone in a long bathroom line dressed just like you. Nothing happens by chance....she lives in Pennsylvania and her brother happens to be a Veterinarian in Glen Allen, Virginia (a short 20 minutes from where I live). We messaged one another a few weeks after our meeting in Dallas. I shared with her my excitement for the Make A Wish partnership and she shared with me that she sat in the audience that morning in tears because her family was a Wish Family and her daughter has been in treatment for the last 3 years with a brain tumor. The odds just increased and I know without doubt our paths were intended to cross on that day.
|Our lives were more connected than we could ever have imagined|
I'm also so proud to say not only did we meet our goal, but we surpassed it and were able to share this opportunity with over 4,900 people. The impact this will have on and in the lives of these two families is immeasurable. I am thankful for opportunities that have opened up for me and people that have embraced my decision and helped me thus far in and through the process. Together we can make a difference and the best is yet to come!!