tag:blogger.com,1999:blog-25635007951441715842024-02-07T22:09:06.948-05:00Three & 1I created Three & 1 to share the joys, challenges and wonders of loving and raising 4 kids. Life, marriage, recognition as an individual, maintaining interests and children are a delicate balancing act. There is never a dull moment and for the most part I love all the moments. I expect to have a lot of personal experiences to share and draw from. Stay tuned.panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.comBlogger252125tag:blogger.com,1999:blog-2563500795144171584.post-43081283875619157462016-12-01T10:41:00.000-05:002016-12-02T10:09:13.849-05:00Share Your Story this Season<iframe allowfullscreen="true" allowtransparency="true" frameborder="0" height="315" scrolling="no" src="https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2Fhillcityrva%2Fvideos%2F1878385135726669%2F&show_text=0&width=460" style="border: none; overflow: hidden;" width="460"></iframe>
I never imagined myself at a church like Hill City Church, but we are thankful that the Lord led us here, because he knew! It truly is a safe place to explore your faith, ask you questions and embrace the love of a community of people who love God, love people and delight in serving Him and others.<br />
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This past week we kicked off our first advent season message and I had an opportunity to share a part of the #TeamBolton story (link to full message below). Many of you prayed and supported us throughout our journey over the last 5 years. The series is called 'You're Worth It'. I wasn't sure how it would all come together, but the team did an amazing job!!! As this piece was shared Sunday, there were moments of true reflection. I cried softly as I was reminded of so many people and their hearts to bless us and it turned into a sob (shoulder shakes and all) and there was not a tissue in sight. I'll leave that there, it was not pretty. A visitor shared with me he thought we were all going to drown in my tears before it was done...ok it wasn't that bad, but those were tears of fullness in my heart. Sometimes we don't know why we go through certain things, but this was a great reminder of how we need to trust God even in things we don't fully understand. When you fight to get up each day and keep one foot in front of the other, when you find a reason to smile, although you are hurting, or better yet...when God places someone in your life, your day, your path to bless you large or small, it allows us to experience the fullness of God's love. It give us hope. I do believe God is always with and around us, he shows himself through creation, through people, words, songs, occurrences and kind gestures.<br />
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There is one point during the taping, we were asked to share why we thought we were worth it. I had to pause, took several minutes trying to formulate a response and instead I found tears and a deep sense of pain and hurt for others...whose prayers were the same as ours, but whose stories ended very differently. Also for the many people in our prayer rotation that are dealing with issues that consume them with grief, pain and uncertainty. As John shared in the message on Sunday...God never said our lives would be without pain and suffering. He also did not say that 'this' was the best, but that we are living for what 'will' be the best. A life with Christ (especially in our lowest places) provides an opportunity for love, hope, grace, joy and peace.<br />
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Right now you may not be going through anything, be thankful, but seek out opportunities to help others who are. We are so thankful and grateful for the love, support, thoughts and prayers you gave to us during one of the most difficult times of our lives.<br />
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<i>Love God, Love People....Pass it On! </i><br />
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Oh and if you are in the RVA area you should come visit us at Hill City Church one Sunday...actually you have 5 opportunities to come hang out on Christmas Eve. Check us out at www.hillcityrva.com</div>
<a href="https://vimeopro.com/hillcityrva/youre-worth-it-advent-2016">https://vimeopro.com/hillcityrva/youre-worth-it-advent-2016</a> (Message Link)<br />
<!--EndFragment-->panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-53315289027217079922016-06-20T21:45:00.001-04:002016-06-21T09:23:47.299-04:00Glory Glory - Survivorship<div class="separator" style="clear: both; text-align: center;">
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Five years ago on this very day we were scheduled to be admitted to Children's Hospital of Richmond @ VCU for our first bone marrow transplant. That date ended up being pushed back because one of Jalen's test came back questioning the potential of a virus in his system. Today, five years later, after some final baseline testing, Mireya has been released to survivorship. We've been waiting for this day for many months. Our Medical Team hinted, you're never 'fully' released, but is it a blessing to finally reach this milestone in our journey.<br />
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In true #TeamBolton fashion a dance party and celebration will be had. Thank you so much for your continued thoughts, prayers, love and support....it has strengthened and encouraged us along the way. We are trusting and believing that all the potential risks, complications or latent effects of chemotherapy and the extremely toxic medications will not be a issue for her in the future. The best of what God has is yet to come!!!!<br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com1tag:blogger.com,1999:blog-2563500795144171584.post-7301002695877542202016-04-19T21:18:00.001-04:002016-04-19T21:39:49.058-04:00A Touching #TeamBolton Facebook Memory<div class="separator" style="clear: both; text-align: center;">
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Facebook reminded me of these photos today and it stopped me in my tracks. This was Mireya's 4th birthday, all she wanted to do was go to Kings Dominion because she had never been. Just weeks earlier she had been hospitalized for about 3 weeks due to low counts and unexplainable bruising.</div>
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We had yet to determine a diagnosis because at the time only one cell line was in mass destructo. Reya had just received a transfusion the day before to help her platelets bounce back and diminish the amount of bruising present all over her body and in her mouth. </div>
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I remember this day so vividly, we knew she wasn't well enough to endure a lot, but we went anyway because we had to be back at the hospital within a day or two for more extensive testing. We enjoyed this day like we had nothing to face. It was the last fun day we had together before our lives were forever changed by a almost three year battle with life threatening illness. It is so hard to watch your child endure something you cannot fix or change. Praying today for so many families....those grieving, those battling and those preparing to fight. </div>
panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-88363724991342447892015-05-23T22:53:00.000-04:002015-06-05T23:07:20.235-04:00Champion Fun<div class="separator" style="clear: both; text-align: center;">
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The last few months have been full of Champion activities. I've had the joy of speaking on behalf of children's medical issues and funding with the Jr. Board of the Children's Hospital Foundation, the YMCA Board and the Miss America Organization. It is always a pleasure to add the real life experience and challenges to the WHY of the overall goal. <br />
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It has been awesome to spend time with the Partners who have been working over the last few months to raise awareness in the community and helping raise money for Children's Hospital of Richmond @ VCU and Children's Miracle Network. I feel like a Mom-mager coordinating schedules and balancing some great events for #TeamBolton. Some of the fun has included a half-time check presentation from Virginia Credit Union at the last home game for the VCU Rams. We enjoyed meeting the President of the Credit Union and his wife to thank them personally for their generosity. The kids loved seeing themselves up on the jumbo-tron and the super fan even made the shot and our section was chosen to receive free pizza...which was totally winning!!! <br />
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#TeamBolton was a part of the check presentation for <a href="http://wric.com/2015/03/24/8news-and-wheel-of-fortune-present-10000-to-childrens-hospital-of-richmond-at-vcu/">Wheel of Fortune's </a>Secret Santa sweepstakes, in which a local winner's charity of choice was Children's Hosptial of Richmond @ VCU for $10k.<br />
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The students at Meadowbrook High School did a phenomenal job with their Roar-athon event this year. We continue to be in awe of what a committed group of young people with hearts to serve others looks like. You can't go wrong with music, festivities and a goal. #TeamBolton loves a dance party, so this will continue to be a favorite of ours for years to come. <br />
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Crowns and hearts go together so beautifully. We enjoyed meeting many of the local and statewide pageant titleholders to share our story, along with our appreciation on behalf of our family and patient families for all these lovely ladies do throughout their reign to benefit Children's Miracle network. This is one of Mireya's favorite events....as she loves a sparkly crown!<br />
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Jalen and Mireya are the Champion kids for the Walmart, Sam's Club, Costco and Chico's stores in our area. It is always great to get out and visit with the employees. The employees in one store are wearing aquamarine ribbons (Mireya's favorite color) along with the Champion photo on their name badges. The others have photos on the registers and bulletin boards. We love all the texts and photo messages we receive from our friends and family when they visit these locations during this campaign. It will be exciting in the next few weeks to see how much they have raised through donations, raffles, cookouts, carnivals and store events. Throwing pies in the Store Manager's faces during the carnival was really cool! It makes my heart smile to see how everyone comes together collectively for a period of time to make a difference. <br />
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We will have the opportunity to travel to Atlanta, then D.C. for the kick-off of the official Ambassador's Tour. This will be an amazing time to meet the other 49 families and children as well as speak to lawmakers on behalf of patient families and participate in some fun activities. I'm certain there will be a lot of stories and pictures to share, but also unforgettable memories.<br />
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Sometimes it is so hard to see beyond the immediate devastation of a situation. Never would we have imagined what the Lord had on the other side of what has been one of the most difficult times in our lives as a family. We are so proud of our children and see it as an honor to serve alongside them in their roles!!!panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-37240029912747779882015-01-29T23:30:00.000-05:002015-01-30T08:13:31.645-05:00Champions<br />
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We spent the first part of today at the Children's Hospital in Child Neurology trying to get closer to figuring out how to address and work through some of the issues Mireya has been having over the last several months. I feel confident that we were able to put a plan in place that will be helpful.</div>
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We spent the early evening celebrating an amazing honor granted to us by the Children's Hospital of Richmond at VCU. Many of you may remember, in October of last year Quentin and I were at the Q94 studios to share the #TeamBolton story for the Radiothon. At the conclusion of the taping, we were asked for a few minutes of our time by our friends at CHOR to tell us about an Ambassador program for Children's Hospital they wanted to nominate both Jalen and Mireya for. The program brings awareness to healthcare, Children's Miracle Network (CMN) and the importance of supporting Children's Hospitals and programs across the United States. </div>
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Every year after a series of nominations 'one' family or 'one' Champion is chosen as an Ambassador to represent his/her state. Jalen and Mireya were submitted in recognition of their ability to brave their respective battles with grace, strength, courage and determination despite and through it all. We continue to be in awe of all they endured over the course of two and a half years to bring us where we are today. </div>
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When we received the phone call about a week ago, I pulled over on the side of the road, speechless and in tears....I am so proud to share the 2015 Champions for the state of Virginia are Jalen AND Mireya. Our friends at CHOR planned a super special family celebration for us at The Desserterie to announce and share with the children that they were chosen to represent Virginia this year in this role and capacity. What does this mean??? It means we continue to do what we've done all along...participate in events to support the Children's Hospital and CMN, share our experience and our story. But wait there's more....an Ambassador's Tour. Two trips, one to the White House (the 2014 Champions met and spent time with the President) and a second week long trip to Walt Disney World with approximately 52 other families (one family from each U.S. State and Canada) all together for a common goal. What an amazing opportunity. Here's a little clip of the 2014 Champions and their time together on the tour. Thank you BIG sister Paris (unable to be with us) for dialing in from school for this special occasion.<br />
<a href="http://childrensmiraclenetworkhospitals.org/About/Champions">http://childrensmiraclenetworkhospitals.org/About/Champions</a> </div>
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Thank you to so many that have loved, supported and kept us covered in prayer. We are so honored to be thought of in such a way to be nominated, but even more humbled to be chosen. To God be the Glory! </div>
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<i>1 Peter 2:9 <span style="background-color: #fdfeff; color: #001320; font-family: Trebuchet, Arial, Helvetica, sans-serif; font-size: 14px; line-height: 20px; text-align: justify;">But ye </span><span style="color: #001320; font-family: Trebuchet, Arial, Helvetica, sans-serif; font-size: 14px; line-height: 20px; text-align: justify;">are</span><span style="background-color: #fdfeff; color: #001320; font-family: Trebuchet, Arial, Helvetica, sans-serif; font-size: 14px; line-height: 20px; text-align: justify;"> a chosen generation, a royal priesthood, an holy nation, a peculiar people; that ye should shew forth the praises of him who hath called you out of darkness into his marvelous light</span></i></div>
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panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com1tag:blogger.com,1999:blog-2563500795144171584.post-13363533800014142972014-12-26T23:20:00.000-05:002014-12-29T17:08:30.367-05:00Procedures & Plans <div class="separator" style="clear: both; text-align: center;">
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Our family enjoyed a wonderful time together yesterday on Christmas day. Today were down at Children's Hospital to complete some procedural testing to help us pinpoint the cause of some of the challenges Reya has been having over the last few months. We expected to have an IV placed and scans done with and
without contrast. I wasn't certain how long it would last, so I packed
up the bag with fun things to help pass the time and a bag of treats to
have at the conclusion of the testing since Reya was not able to eat
anything since last night. We reported to Radiology and after a considerable wait, there was a change in plans....no IV, no contrast needed. With those two elements eliminated, we were done relatively quickly. <br />
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We are still in our maintenance phase of treatment and are routinely seen in an auxilliary Children's Hospital clinic in the West End. Since we were at the Main Hospital, we decided to take a trip down to our old stomping ground for a quick visit. It is such a joy to see the smiling faces of people who were such a big part of the process and journey. The entire clinic experience starts with these two ladies and I truly love them both so much!!! Reya was super happy to see Ms. Rachel and Ms. Roz. It was like catching up with family and friends.<br />
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The girls attended the Clinic Preschool with this beautiful trooper. We are thrilled to hear all the great news happening in the midst of her 2nd battle. God is so amazing! Continuing to pray and thank the Lord for continued progress and victory in her fight.<br />
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As we were leaving the hospital we saw several familiar faces and ran into the Dietary Technician that cared for us while on the Bone Marrow unit. She used to bring the latest movies to the room for Mireya and the children to watch. She took great care of us and always knew how to put a smile on Reya's face. It was such a blessing to us and I love that our paths connected again.<br />
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We have few additional appointments in the coming weeks to help us assess and determine a plan of action to manage these issues. We are continuing to enjoy the 'new normal', but look forward to 2015 being a year that propels #TeamBolton to even greater places.panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-71118316698184257122014-10-17T12:20:00.000-04:002014-10-17T16:51:05.819-04:00Continuing to Walk in the Promise<br />
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These last few months we've faced issues and situations that have had us on alert, but we are grateful for progress and even more thankful for God allowing us to continue to hurdle the obstacles and common issues that children encounter as latent effects of chemotherapy and some of the toxic medications taken throughout the process.<br />
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We have officially transitioned to the Peds/Hemoc Survivorship Program. Our appointments continue to track every 3 months and will hopefully soon be stretched to every six months beginning in January and then annually for the duration.<br />
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Overall Mireya is doing well in the maintenance phase of her treatment. She has some of the common struggles with sun exposure, fatigue, unexplainable stomach and headaches which make it difficult to flow through school days, but she loves learning and is doing exceptionally well in 2nd Grade despite it all.</div>
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Makinley started Kindergarten this year and is adjusting well to a new schedule and routine. Our Hero brother, Jalen has managed to admirably work through the anxiety and level of uncertainty that began to affect his day to day activities. He is having great successes as a 4th Grader. Paris is exploring the world through her studies abroad in Spain this semester and preparing to graduate in the Spring. It is something I had the joy of experiencing as a child and I love that she has the opportunity to be immersed in the culture and life of another country. To capture her experiences visit <a href="http://lapuertaaespana.blogspot.com/">lapuertaaespana.blogspot.com</a>. <br />
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Quentin and I continue to push through to get all areas of our lives on track and we make a conscious effort, to keep things in perspective, while savoring life in this new place. It has been several months, but it still feels different to exist in a space where you are free to live without major limitations. Simple things give us great joy. I cannot count the number of times there have been tears in my eyes or I've cried relishing the normalcy of a single moment or occurrence in time.<br />
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<tr><td class="tr-caption" style="text-align: center;">I'm Not My Hair, BUT I'm Back Where I Started</td></tr>
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Take nothing for granted. Handle others with love and a true measure of grace. Enjoy every day as it could be your last and remember every good and perfect thing comes from the Lord in HIS timing. Several of you have shared how you've visited the blog and felt our absence. Thank you for continuing to love, support and connect with us. Sharing and connecting with others is the beat of my heart. Your support and presence with and for us, kept that beat strong even when it was weary. I will work on consistently sharing the good that continues to happen with and for us.<br />
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Love and blessings always from #TeamBolton!panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-35472383812086797422014-04-04T14:39:00.001-04:002017-04-07T11:08:47.957-04:00Relaunching & Paying It Forward<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyhyphenhyphentLvXaDRLGRUcRxxJEYKEmWwroSvt8iDAeHyqm_beGhzLQRo1u70PlJFITXeO5iyQSAjs1_-DjsFdPmzHcv5EQLwW7iRe0cOoJIW7_Ciza-nx7rMedYz5p33oKu2Kl5S1Mdmdccy5kQ/s1600/stresstalk.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyhyphenhyphentLvXaDRLGRUcRxxJEYKEmWwroSvt8iDAeHyqm_beGhzLQRo1u70PlJFITXeO5iyQSAjs1_-DjsFdPmzHcv5EQLwW7iRe0cOoJIW7_Ciza-nx7rMedYz5p33oKu2Kl5S1Mdmdccy5kQ/s1600/stresstalk.jpg" width="213" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Giving the 'Stress Talk'</td></tr>
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If you know anyone that has been through any
sort of medical journey, you know or can associate with the financial
burden that treatment over an extended period has or can have. As a
result I had truly been seeking direction on what it is I needed to do
to help my family's financial bottom line. I started reaching out to
former colleagues and Managers about the possibility of going back into
the conventional workspace. I've had the opportunity to be at home with
my children for the last 10+ year and I've enjoyed it very much. The thought of going back to the Corporate environment was even more of a concern when I considered having to find something that would allow me to make enough money to cover the expense of having my children cared for and still allow me to take care of the obligations that need to be
addressed.<br />
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Many of you know or may recall I had a
growing Spa and Wellness business that afforded me the opportunity to go into the home, workplace and community to share the
importance of eliminating stress and give the 'gift of relaxation'
through an amazing and relaxing spa experience. I help others 'de-stress and increase face value' through the education of proper skincare
and the essentials of taking care of ourselves. I have not been been able to pursue this business over the last few years as we've dealt with my daughter's illness and ongoing treatment. I have been affiliated with and representing this company for a long time. Connecting with people and
helping others is my passion. Whether it is through providing solutions
to issues, giving people permission to take 'the pause' or through
helping them make changes in their lives by taking advantage of this
opportunity for themselves and their family. I
pondered and prayed about what I could do, and the Lord continued to instruct me to 'use what is
in your hand'. Several months ago,
my daughter was transitioned to the maintenance phase of her treatment and a few weeks following that, I revived and relaunched my business. To connect with me or learn more check me out at <span style="font-family: "georgia" , serif;"><a href="http://www.facebook.com/beautispava" target="_blank">www.facebook.com/beautispava</a></span><br />
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I work with an amazing group of people and have never
been more excited about this business until now. About 4 weeks ago I was at a Leadership Conference
in Dallas when a BIG announcement was made. Let me preface the announcement by saying, BeautiControl has
an amazing Foundation, W.H.O (Women Helping Others) <a href="http://www.whofoundation.org/">www.whofoundation.org</a> that has granted over
5 million dollars to community focused charities and organizations
serving overlooked women, children and families. I have seen dollars
from the W.H.O. Foundation granted and serve the Richmond area several
times over the last 10+ years. <span class="fbPhotosPhotoCaption" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">I
was at a loss for words when BeautiControl unveiled their partnership
with the Make A Wish Foundation. </span></span>I sat in that meeting
sobbing as a Wish Family came out and shared their journey to victory
over illness. <span class="fbPhotosPhotoCaption" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Understanding their plight and knowing first hand how tremendous this is
for families made me PROUD of this company I represent. </span></span>Our
collective mission in one month was to share
this opportunity with 4,500 people. My personal desire was to do my part to make this happen by sharing it with
everyone I could. The reward of going out and working on behalf of 'Paying it
Forward' and
blessing others for me, was bigger than any other reward the company
could give.</div>
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Incidentally during a break the day before, I
took a detour to a bathroom off the beaten path and ran into this
beautiful lady. Obviously, she got the black and coral memo. We
chuckled, decided we had to take a picture because what were the odds
amongst 2000 women you would 'happen' to run into someone in a long
bathroom line dressed just like you. Nothing happens by chance....she
lives in Pennsylvania and her brother happens to be a Veterinarian in
Glen Allen, Virginia (a short 20 minutes from where I live). We messaged
one another a few weeks after our meeting in Dallas. I shared with her
my excitement for the Make A Wish partnership and she shared with me
that she sat in the audience that morning in tears because her family
was a Wish Family and her daughter has been in treatment for the last 3
years with a brain tumor. The odds just increased and I know without
doubt our paths were intended to cross on that day.</div>
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<tr><td class="tr-caption" style="text-align: center;">Our lives were more connected than we could ever have imagined</td></tr>
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I'm also so proud to
say not only did we meet our goal, but we surpassed it and were able to
share this opportunity with over 4,900 people. The impact this will
have on and in the lives of these two families is immeasurable. I am
thankful for opportunities that have opened up for me and people that
have embraced my decision and helped me thus far in and through the
process. Together we can make a difference and the best is yet to
come!! </div>
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panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-70038275017761408852014-02-06T01:00:00.000-05:002014-04-04T14:11:15.251-04:00Settling in Our Groove<div class="separator" style="clear: both; text-align: center;">
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These last few months have been a time to really getting back into our groove and enjoy the regular rotation of life. It's very easy to want to jump right back into everything, but honestly just taking a step at a time, being present in the moment and living each day to the fullest without medical constraints or restrictions has felt like a true luxury. I wish and want this for all our friends and family we know and love in the varying stages of caring for a child with illness and in treatment. <br />
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We continue to be so thankful for the restoration of Mireya's health. Seeing her smile and knowing she is healthy brings us great joy. The joy of the Lord continues to be our strength.<br />
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<i><span class="text Ps-19-8" id="en-NIV-14177">Psalm 19:8 The precepts of the <span class="small-caps" style="font-variant: small-caps;">Lord</span> are right,</span><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-19-8">giving joy to the heart. </span></span><span class="text Ps-19-8">The commands of the <span class="small-caps" style="font-variant: small-caps;">Lord</span> are radiant, </span><span class="indent-1"><span class="indent-1-breaks"></span><span class="text Ps-19-8">giving light to the eyes.</span></span></i>
panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-46621123660005913602013-12-05T17:33:00.001-05:002013-12-06T08:48:53.377-05:00Students with Heart<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRmC9t4WpLL56u_-yLF19Pf6CLvD7TdOEHaw9Dwtmx5EoaQs1qunCUAvZRUt_2mulTxGhlqIS70VP8Ncoq6ecC0tllAfDL-Sq77gM2W3TdwKcM9JDYjZdkImqibA9_uLulDI9sSOl8P0HP/s1600/IMG_1022.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRmC9t4WpLL56u_-yLF19Pf6CLvD7TdOEHaw9Dwtmx5EoaQs1qunCUAvZRUt_2mulTxGhlqIS70VP8Ncoq6ecC0tllAfDL-Sq77gM2W3TdwKcM9JDYjZdkImqibA9_uLulDI9sSOl8P0HP/s320/IMG_1022.JPG" width="240" /></a></div>
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I'm so proud of my daughter Paris who spent her birthday yesterday sharing and raising money for our dear little friend Emily's BandAid Drive. We know this is a time that studying and making it through these last few weeks of the semester is the focus, so a special thank you to the students of LC that donated to help the children of Children's Hospital. Paris is her mother's child so she spent a lot of the day yesterday in tears because nothing is more moving than seeing the hearts of people come together to help and bless others. That's what its all about creating awareness, paying it forward, being the blessing. Emily came in to our lives close to three years ago at the beginning of our medical journey with Severe Aplastic Anemia. She and Mireya became very close friends and looked forward to seeing and spending time with one another in and out of clinic. This little girl is pure joy and a fighter. Keep Emily and her family in your prayers for complete victory over Neuroblastoma. Visit her site<a href="http://www.emilyhubbel.com/"> www.emilyhubbel.com </a>to learn more about this special little girl and her journey. Last year Emily and her family raised over 3000 boxes of bandaids. This is her 2nd Annual Band-Aid drive and we are so happy to be able to participate in this effort. Band Aid donations are being collected through this week.<br />
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To my girl Paris and friends...you are awesome!<br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-34120016079380616982013-11-27T12:34:00.001-05:002013-11-27T12:34:43.408-05:00Thankful<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_abaRhIyfMq33sDOCBlk48FHSXWUSExWBTzNqZBR5ePXGVx1AfsdGH5cG0SyaGYf62I1Bz2lGJWYSNl_08TM7u-wXmW5FwnCr9q0EluaPyKuS1IV7rDlozPzSTKGuFn32BLSuivlJmS1K/s1600/2008-12-06+23.53.35.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_abaRhIyfMq33sDOCBlk48FHSXWUSExWBTzNqZBR5ePXGVx1AfsdGH5cG0SyaGYf62I1Bz2lGJWYSNl_08TM7u-wXmW5FwnCr9q0EluaPyKuS1IV7rDlozPzSTKGuFn32BLSuivlJmS1K/s320/2008-12-06+23.53.35.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyMFnrC5DhHzEOeaqInzNtkaz7Egfr2LZQJ3iJXR2PPnAJC_XcByhUrH09TgZ4TliZ9GFs0UVX7O5pIKveY6pJLHhyrh6QsU9smtoKrTyiIXd2tvWypiaJrVOwxzRW96iOcqpk0XJU7dU1/s1600/paris.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyMFnrC5DhHzEOeaqInzNtkaz7Egfr2LZQJ3iJXR2PPnAJC_XcByhUrH09TgZ4TliZ9GFs0UVX7O5pIKveY6pJLHhyrh6QsU9smtoKrTyiIXd2tvWypiaJrVOwxzRW96iOcqpk0XJU7dU1/s320/paris.jpg" width="213" /></a></div>
Gone are the days of being consumed with a life solely driven by treatment and all it entails. Today we are enjoying living life in a new way (the difference a year makes). Everyone is healthy and happy and there is so much we are grateful and thankful for! My prayer is that everyone take a moment to truly understand how fortunate and blessed we are despite it all. There are many things that have the ability to steal our joy if we allow it. 'Choose' to maintain a positive disposition regardless of the circumstance or situation. Make someones day and change how you feel about yours! Look for ways
you could bless others today...a smile, a phone call, a hug, a
encouraging word, a meal, a dollar, your time...the list goes on and
on.<br />
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Take time to reflect on the positive and move past the negative to reposition
yourself and help others. Wishing everyone a Happy Thanksgiving! Love and blessings to you all!<br />
<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-32994495572219165662013-09-17T13:54:00.000-04:002013-09-17T14:20:37.567-04:00Campus & Community ~ Changing Lives<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipxxS2Y2jY656hkC5UNG2N800eCGMdlfHXHrbD_YNHWy8qwHuJ5F5oWveREAsv4PawJ4BTJXaLnzv4SpYhL_RUbPlMcLmzI2UxkhZteUU1L-5qKX9Jc0j_LOEXxtaad9Utdv_UKVwWJqPv/s1600/2008-11-05+14.32.37.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipxxS2Y2jY656hkC5UNG2N800eCGMdlfHXHrbD_YNHWy8qwHuJ5F5oWveREAsv4PawJ4BTJXaLnzv4SpYhL_RUbPlMcLmzI2UxkhZteUU1L-5qKX9Jc0j_LOEXxtaad9Utdv_UKVwWJqPv/s320/2008-11-05+14.32.37.jpg" width="240" /></a></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjd_LbdjfgtTExwDLWbMctsuDn0HrRIqJ4f2XwHtAEsKP9OatMx3T8S94faOHBRz70SGyZ1wfxbj1mF1fM2cuaeSdUAUzbXpcy3-z7GzZzvamFcyTmK702pMLB75TdgHz1XAEgreWLddwsV/s1600/2008-11-05+15.00.33.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjd_LbdjfgtTExwDLWbMctsuDn0HrRIqJ4f2XwHtAEsKP9OatMx3T8S94faOHBRz70SGyZ1wfxbj1mF1fM2cuaeSdUAUzbXpcy3-z7GzZzvamFcyTmK702pMLB75TdgHz1XAEgreWLddwsV/s320/2008-11-05+15.00.33.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">#TeamBolton & VSU President Dr. Keith Miller</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqd3rFDmFQo3Dm39lESzfqANMibVQfn8OADTlESSdqy_n1hS-Pm9Nf4Muiq4Qmm91IKkTgA0SyPU7QWRUULEcoSjX5mzn2yXBA67218PUJlGOJkTF0dfu-jOlfG7lLlICKOevBFkvEg2Kh/s1600/2008-11-05+14.56.36.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqd3rFDmFQo3Dm39lESzfqANMibVQfn8OADTlESSdqy_n1hS-Pm9Nf4Muiq4Qmm91IKkTgA0SyPU7QWRUULEcoSjX5mzn2yXBA67218PUJlGOJkTF0dfu-jOlfG7lLlICKOevBFkvEg2Kh/s320/2008-11-05+14.56.36.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Be The Match Team</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhDVFaJhRWgUxvZGzuT70nW-mZtwbg1w4F-NTSWVgYZcjAS9gvr0xgdxiqumklcIk9XC0W1EHtk4wzrQlDwXW0_5Sic1DKIh1qgX_i8dFoC-ISsvYr3YtuwvCpwNdm8OfHeElKwUktF5GH/s1600/2008-11-05+14.53.34.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhDVFaJhRWgUxvZGzuT70nW-mZtwbg1w4F-NTSWVgYZcjAS9gvr0xgdxiqumklcIk9XC0W1EHtk4wzrQlDwXW0_5Sic1DKIh1qgX_i8dFoC-ISsvYr3YtuwvCpwNdm8OfHeElKwUktF5GH/s320/2008-11-05+14.53.34.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Lovely Ladies of The Links Inc.</td></tr>
</tbody></table>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhVh2-NaLpIYRwiEPRQTc97KLnR7YxEZcnSqZuSy0rVtZlPrQOYCn7pdzv_O76mEITlIr5jSaL7z41AqVRjoys2kFa0PKti4_jHIkzqX_yZg7PxLPdqVFjUgLI5gNbdccSbalGnqwXHyIp/s1600/2008-11-05+15.09.09.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhVh2-NaLpIYRwiEPRQTc97KLnR7YxEZcnSqZuSy0rVtZlPrQOYCn7pdzv_O76mEITlIr5jSaL7z41AqVRjoys2kFa0PKti4_jHIkzqX_yZg7PxLPdqVFjUgLI5gNbdccSbalGnqwXHyIp/s320/2008-11-05+15.09.09.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"></td></tr>
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We spent some time this morning participating in a cause and effort very dear to our hearts. I've blogged several times about Be the Match, an organization transplanting hope into the lives of individuals and families in need a bone marrow transplants.<br />
<br />
My husband oversees Web and Technology Services at Virginia State. The Drive was scheduled at the University to benefit a local 12 year old boy diagnosed with Sickle Cell Anemia in need of a transplant. Without hesitation, we both knew we had to actively participate. It all starts at the top....VSU President Miller arrived to help kick-off the drive and show his support of this campus and community partnership. The Petersburg Chapter of Links Incorporated was on site to volunteer and help
facilitate the process, along with the Be the Match Team and
representatives from a local Sickle Cell Anemia Organization. <br />
<br />
I'm believing that the VSU community will continue to show up and respond to this event today. Finding a match in my own household saved my daughter's life and I want
to help those in the same situation have more donors available. Please visit <a href="http://marrow.org/Home.aspx">http://marrow.org/Home.aspx</a>
and join the registry or see how you can become involved with this
organization and potentially change the life of this little boy or someone
else in need of a bone marrow transplant.<br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-34326523361409910322013-09-04T11:19:00.002-04:002013-09-04T11:19:53.849-04:00Magnificent Grace<div class="separator" style="clear: both; text-align: center;">
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Five pictures worth a thousand words each and more. So thankful for the grace of God that kept us in our right minds and with a measure of peace in the midst of a situation where we were often overwhelmed. In the words of Marvin Sapp 'never would have made it without you'....we felt powerless, but not without hope, knowing God is/was able to turn our situation around in an instant. The manifestation was not instant, but we kept trusting and believing and as a result, lives were touched and our faith increased exponentially. <br />
<br />
We walk by faith and not by sight ~ the things we've seen and experienced over these last few years have given us a greater appreciation for life and those in our lives, but also showed us to keep things in God's perspective (what does God say about my situation) and to never, ever give up hope. Mireya is our Warrior Princess, our son our Hero. Every time we see this beautiful smile and think of his selfless love, it reminds us of God's love for us. Thank you Father for your faithfulness towards us!!!!<br />
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<i>Exodus 23:25 And ye shall serve the Lord your God and he shall bless thy bread and thy water and I will take sickness away from the midst of thee.</i><br />
<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com1tag:blogger.com,1999:blog-2563500795144171584.post-16723950068169942242013-08-15T12:41:00.000-04:002013-08-26T14:39:42.203-04:00The Difference a Year Makes<div class="separator" style="clear: both; text-align: center;">
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One year....365 days.....ups, downs, tears, joy, regrouping, reclaiming, but best of all.....rejoicing!! We've reached a major milestone, our one year appointment. It's hard to believe that just one year ago we were being admitted for our second bone marrow transplant.<br />
<br />
In the Clinic, I met a few parents new to their diagnosis and the routine. The Fishbowl was filled
with kids receiving chemo therapy and transfusions. I was immediately flooded with thoughts of the two and a half years of that rotation. I encountered a parent overwhelmed with concern as their Medical Team gave them the news that a Bone Marrow Transplant is their next viable option. We had moments to talk and embrace, but I look forward to being able to share (from the other side of the coin) our experience to help prepare and align their expectations. My heart was also heavy as I noticed the frailty of life in a few of the
young patients who have been fighting these illnesses with all they've
got. I sadly learned mere days after this visit that one of those
precious lives would suffer no more. It's unimaginable and my heart
grieves with this family. <br />
<br />
Prior to this appointment we'd received a letter that the Head of Peds Hemoc would be leaving VCU. Reading this letter made us sad. Not sad for ourselves but for the hospital. Dr. Godder is small in stature, but very matter of fact and she shoots it straight. When your dealing with life and death of a child, you want 'shoot it straight' and give me all the variables (at least we did)! This woman is a wealth of knowledge and wisdom. What are the odds that one of the best Physicians in this arena would be 'in
place' during our diagnosis and active fight to partner with us and be
the overseer of our daughters care? We're sad to see her go, but are happy she'll be closer to her family and continue to be a major force and resource doing something she loves...."bone marrow". It was bittersweet to have our last
appointment with her just mere days before she leaves. She made a
point of coming in to have her appointment with Mireya even after adjusting her schedule to see the remainder of her patients the week before.<br />
<br />
Mireya had to have an EKG and a battery of tests/labs completed to monitor her progress and success. We'll be seen every few months
for the next year to ensure Mireya's progress is staying on
task. Today we had an unspoken release. The release of emotion likened to when you had your first
child and the Doctor handed you a healthy boy or girl and
you were overcome with tears and emotion. Mireya is even
more beautiful than the day they handed her to us AND (despite it all) her health has been
restored. Reya has been taken off all medications! She will be able to start getting her immunizations
and go to school with no restrictions. There are several objectives and areas we have to be
watchful over, especially given the medications and treatment she's
received over the last few years, but we're believing even the slightest
of instances will not be on our radar. We continue to stand, trust, believe, and confess that her
body will function as it was created and designed without incident. <br />
<br />
We have met some amazing families and people. It takes one to know
one (and to understand)......our circumstances and situations may be
different, but we're all fighting for the same thing. I'm looking forward to continuing to to serve, support and be an
advocate for care and to those organizations/foundations/businesses
doing amazing things to make a difference in the lives of others. <br />
<br />
Thank you for your love, support, prayers and any/everything that was done to lighten our loads and minds during this process. Life is good and our best and brightest days are ahead of us.panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com1tag:blogger.com,1999:blog-2563500795144171584.post-83467912676187008032013-08-08T16:20:00.000-04:002013-08-24T16:21:09.934-04:00Miracles & Blizzards<div class="separator" style="clear: both; text-align: center;">
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We had an awesome time at Dairy Queen today helping raise money at their largest fundraising event of the year, Miracle Treat Day. Dairy Queen donated $1 or more for every Blizzard sold at select locations today. Thank you to all the friends and family that came by to support #TeamBolton and Children's Hospital of Richmond. It's always amazing and touching to see the community come together to support an event that has made a difference in our lives personally and the lives of so many others. We appreciate you sharing this event with your co-workers and for spending time with us. A special 'thank you' to Miss Chesterfield (and the Miss Chesterfield Organization), Kiara Williams & her Princesses for your community service and helping to make the event fun and glamorous! <br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-41482175515548143782013-08-01T17:41:00.000-04:002013-08-23T17:48:37.269-04:00Rest, Relaxation & Submersion<div class="separator" style="clear: both; text-align: center;">
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We recently took our first vacation in almost three years and my oh my how I've missed the salt life. One of the most treasured moments was watching Mireya swim for the first time. Two and a half years of not being able to swim has been a challenge for
all of us, because if one is not doing it, neither are the rest of us.
Mireya took to the water like a fish or as she says a 'Princess
Mermaid', we could not keep her out of the pool. We ate breakfast, she
wanted to swim....we came in from dinner, she wanted to swim. It was
pure joy to oblige her. Jumping back into our beach routine and groove
was so much fun. I miss digging my heels down in the sand and soaking
up the sun. Next on the agenda, time away for Mommy & Daddy...so
thankful for life, love and togetherness. God is good!<br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-28082202930209967792013-07-29T13:15:00.000-04:002013-08-24T16:54:44.695-04:00Summer Fun on a Mission<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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#TeamBolton has been having a great summer. Days have been filled with friends, fun and enjoying things we've not had the chance to do for so long. Many priceless moments and times of reflection of just how far the Lord has carried and brought us. One of the most touching parts is the 'thankfulness' Mireya has. Many times she has grabbed my hand and said 'thank you' for taking me there, or 'thank you' for letting me do this (tear).<br />
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We were asked earlier this year to be a part of a feature story for the Children's Hospital of Richmond (CHOR). The magazine is currently in circulation for the summer at a variety of places around town. They did an excellent job outlining the journey with vantage points from both a personal and medical perspective. So thankful to have a Children's Hospital right here in town with Doctors, Nurses, medical staff and resources that we could count on to facilitate and oversee Mireya's care.<br />
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<tr><td class="tr-caption" style="text-align: center;">Magazine Cover</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">#TeamBolton Feature</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Promo Flyer for Families with Heart Program</td></tr>
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Our family also had the opportunity along with Miss Chesterfield to quench thirst and raise money for the Children's Miracle Network and Anthem's Annual LemonAid Fundraiser. There were lemonade stands up all over town to help put the 'squeeze' on childhood cancer and benefit our local Children's Hospital. Sometimes it's hard to envision the difference you make when donating a dollar or two, but its amazing what can be accomplished collectively. Thank you to the many that were out and about that donated to this cause and those who stopped by to visit with us personally.<br />
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<tr><td class="tr-caption" style="text-align: center;">Our Hero Jalen</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Local Firefighters Supporting the Cause</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Miss Chesterfield Kiara her court & Miss Chesterfield Directors</td></tr>
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Mireya will be having her one year checkup in about a week. It's hard to imagine just a year ago we were gearing up for our second transplant and to see where we are today. God is so faithful and we're so thankful! <br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-66480757956814393082013-06-11T13:12:00.001-04:002013-06-11T13:28:27.673-04:00Total & Complete Healing<div class="separator" style="clear: both; text-align: center;">
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Mireya had a great appointment this past week. Her counts are soaring and holding beautifully. The best news during that appointment was the results of her chimerism test. The chimerism testing gives us a specific picture of the cellular composition of the body. For many months Mireya's was between 30-40 (higher than we were comfortable with) and then sitting consistently in the low 20's. We had come to the realization that perhaps the mix of her cells and Jalen's cells would just co-exist and stay around this point. The latest test showed that Reya's cells were 'undetectable' *praise break*. The Head of Peds/Hemoc said when she saw those results pop up on the screen she was 'speechless'. This was a greater outcome than she expected for Mireya!!!!! So to quickly put this in perspective, if you recall when Mireya was taken off her immunosuppression meds following her first transplant, there was a small percentage of her own cells that remained in her body which were not destroyed by the chemotherapy. Those cells re-emerged with a vengeance and started destroying all the cells in her body, resulting in the dire need for another transplant (thank you Lord for Jalen!) Those cells no longer EXIST in her body. This is what we've prayed, trusted and believed God for. The child with the issue of blood...totally and completely healed. God is so faithful!!!! ALL things are possible for them that love the Lord. Don't give up hope!</div>
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We could not have gotten to this point or place without the love, support and hearts of many....for that we are eternally grateful. There is no one I could have walked with or made it through this journey with, other than Quentin. Support, love, tears, laughter (to keep from more tears), a covering. We drew strength from each other, we stood 'together' in faith, we prayed long and hard 'with' one another and 'for' each other through it all. Our faith has increased to another level and we've personally been touched by the power and unity of people (family, friends, church family) and community. Thank you for standing with us, for following our plight, for all that you've done to lift our burdens and to add joy and happiness along the way (this blog has been viewed and shared among 57 different countries)....simply amazing. We are inspired and extremely proud of the strength of our children (those little lives we fought so hard and endured so much to bring into this world). We continue to pray and trust God with all he has for each of them....our blessings....our gifts.<br />
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Our dreams are big, our future is bright, our desire to serve and bless others has continued to grow. God knows our hearts. So now we recover, we reflect, we revisit all the things we've desired to do that have been placed on hold and we start filtering those things back into our lives. Simple pleasures to enjoy and some long awaited things to plan for. Mireya is super excited to finally get to do something she has not been able to do for over two years. She received the clearance to go swimming, so this summer...IT"S ON!!!! We will return to clinic in about month or so for our one year visit and exam. This will include some extensive testing that will provide the necessary benchmarks as we transition into the maintenance phase of treatment.<br />
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Words cannot express our happiness, appreciation or thankfulness. Thank you for walking with us, thank you for trusting with us, thank you for praying with us and believing with and for us.<br />
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<span style="background-color: #fffefd; color: #001320; font-size: 14px; line-height: 21px; text-align: justify;"><i><span style="font-family: Georgia, Times New Roman, serif;">Matthew 10:27 What I tell you now in the darkness, shout abroad when daybreak comes. What I whisper in your ear, shout from the housetops for all to hear. </span></i></span><br />
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We made a decision to trust the word of God, despite what it 'looked' like or 'felt' like. Our faith reassured us that Mireya's health would be restored and after almost two and a half years of a life in limbo I'm shouting<b> </b>*in my loudest voice ever* GOD IS SO AMAZINGLY AWESOME (yes all caps is appropriate here)!!!<br />
<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com4tag:blogger.com,1999:blog-2563500795144171584.post-39934212921502458032013-05-07T12:43:00.000-04:002013-05-07T13:42:44.769-04:00It's a Celebration<div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0_XqvEilQpKhyphenhyphen7BtZVorhzZiM2iD5_W5G_ai18vIypZeeZu3DHVluli8MYbhE4yf3qfPj2aAPLR7MLbir_lAAGC6ovk5sycwwytSRFtkgAwzAZTbvUS1mEzAkz1DMD35tHbReY9bebkGj/s1600/2008-06-21+22.23.50.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0_XqvEilQpKhyphenhyphen7BtZVorhzZiM2iD5_W5G_ai18vIypZeeZu3DHVluli8MYbhE4yf3qfPj2aAPLR7MLbir_lAAGC6ovk5sycwwytSRFtkgAwzAZTbvUS1mEzAkz1DMD35tHbReY9bebkGj/s320/2008-06-21+22.23.50.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Beauty Station Visit</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtI4tdm-8S-7JWVjFYuNSeEU0f0juuHEyI_SFSItfh7DWLKL-2FbuJ2tt-Mb-n3x6gV1enojdUiLRkQlV35K5V2zY-WXoGAhp8E7h-fxrOcCu7xKJJUaxe2KMlF-4_K1FC8VwnSz2JaZFp/s1600/2008-06-21+22.25.30.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtI4tdm-8S-7JWVjFYuNSeEU0f0juuHEyI_SFSItfh7DWLKL-2FbuJ2tt-Mb-n3x6gV1enojdUiLRkQlV35K5V2zY-WXoGAhp8E7h-fxrOcCu7xKJJUaxe2KMlF-4_K1FC8VwnSz2JaZFp/s320/2008-06-21+22.25.30.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Which camera are we looking at?</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJyNrPB3TbRpvwqh0T6CCqmMpIQofSF4QxljlhMOBAp-ybUqX8qt4sFV83cagFJ8Z_ptYMU8J6cHlUHkMpeCGvQfGSKHCF8xxDYgU7bGJ47hyESU6KLu7UsrAsYl-qJL3CujabxANbIq60/s1600/2008-06-22+01.41.11.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJyNrPB3TbRpvwqh0T6CCqmMpIQofSF4QxljlhMOBAp-ybUqX8qt4sFV83cagFJ8Z_ptYMU8J6cHlUHkMpeCGvQfGSKHCF8xxDYgU7bGJ47hyESU6KLu7UsrAsYl-qJL3CujabxANbIq60/s320/2008-06-22+01.41.11.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">In all the fun upstairs, Jalen has lost his shirt and tie</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJuvShX3BdPdY_OuQJlSDkZY56pylCe13FKjbLMBLp3gIoCLYNAL5ZjcoVeYTap9xIrKg-6pbpbD8GnNFOkZlUdgJb2qqqQy9gasJi_5gGh8sFQ8lnk-9KaUfmcWXZ48_KTPEdJSL7Larz/s1600/2008-06-22+01.51.39.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJuvShX3BdPdY_OuQJlSDkZY56pylCe13FKjbLMBLp3gIoCLYNAL5ZjcoVeYTap9xIrKg-6pbpbD8GnNFOkZlUdgJb2qqqQy9gasJi_5gGh8sFQ8lnk-9KaUfmcWXZ48_KTPEdJSL7Larz/s320/2008-06-22+01.51.39.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Dancing with Sidekick </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjC-zvAFidN-JVWvFJKo0fmqRpl-r3Q7ILAa6P4Qcig2rU_2FsrSCbmRxs0bDB_gsHas5O6wjGXCGBNn7EtHm5hlcv6UjYKdmz039Cib13WY6ij3LGwcste4yPPMHbxA2cFQ86xhXwNOWKP/s1600/2008-06-22+02.08.41.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjC-zvAFidN-JVWvFJKo0fmqRpl-r3Q7ILAa6P4Qcig2rU_2FsrSCbmRxs0bDB_gsHas5O6wjGXCGBNn7EtHm5hlcv6UjYKdmz039Cib13WY6ij3LGwcste4yPPMHbxA2cFQ86xhXwNOWKP/s320/2008-06-22+02.08.41.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Daddy and his Princess</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvh9AegwxddNWo11IaIPNb3fDkVZRrzxPtWIRo9GPzEDD75diDUr9ABXSwoD9HE-3DuJb8ndvBVgeTPWGJNVyb7Xz43TbW8OZ7pGgE5UtrPT6JlNDRs8c7PC8btmXu7WrNv4rYyo6BKqmR/s1600/2008-06-22+02.41.50.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvh9AegwxddNWo11IaIPNb3fDkVZRrzxPtWIRo9GPzEDD75diDUr9ABXSwoD9HE-3DuJb8ndvBVgeTPWGJNVyb7Xz43TbW8OZ7pGgE5UtrPT6JlNDRs8c7PC8btmXu7WrNv4rYyo6BKqmR/s320/2008-06-22+02.41.50.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Three Amigos..Jalen found his shirt and a cool hat.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi22MVfl4UJReAeZ_ZYbENx0b1VD0xfbZZPg6D3ZeZDaeyzDh546_VsLLSNeyzgxug63xdIsXPrsp-5Mk5zfkSSImaWLgrHUMJw5oUN6Qtp6nF1jOxtBwjO74rdLVGulVltt7qodIZlhlbn/s1600/2008-06-22+02.42.33.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi22MVfl4UJReAeZ_ZYbENx0b1VD0xfbZZPg6D3ZeZDaeyzDh546_VsLLSNeyzgxug63xdIsXPrsp-5Mk5zfkSSImaWLgrHUMJw5oUN6Qtp6nF1jOxtBwjO74rdLVGulVltt7qodIZlhlbn/s320/2008-06-22+02.42.33.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">It's a Wrap....Good Night</td></tr>
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Every day is a celebration. The Heroes Ball was the first of many celebrations. #TeamBolton had so much fun. It was a incredible evening with an amazing group of people coming together to raise awareness and funding for Connor's Heroes. It's hard to put into words want Connor's Heroes has meant to us over the last two years. The calls, visits, love, support, events, programs and opportunities to create memories and enjoy 'fun' moments as a family have been priceless. Connor's Heroes is an organization that understands how illness alters the life of the entire family, coupled with the challenges and struggles that accompany balancing life and treatment. I want to do my part to ensure they are able to continue touching and reaching the lives of families touched by cancer and life threatening illness. Be sure to visit <a href="http://www.connorsheroes.org/">www.connorsheroes.org</a> to see how you or your organization may be able to support the vision and mission.</div>
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Red was sort of our family themed color of choice. I chose red because it was a statement of conquering the issue of 'blood'. Mireya choose to wear white, which was very fitting. The little girl with the 'issue of blood', washed, cleansed and walking in victory....nothing but the blood of Jesus. It took faith and determination for the woman with the issue of blood to receive her healing. She said 'if I can just touch the hem of his garment, I will be made whole'. This has been our stance and prayer for over two years, that Mireya would be made whole, that her health would be restored without issue. We're thankful and grateful that through it all...the good, the bad and the questionable that God has carried and seen us through. We had no control, but our faith told us to hold on and trust God. Don't stop believing.....hold on to the promise. Mireya has three months left in her active treatment and she is doing tremendously. </div>
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<span style="background-color: white; font-family: 'Trebuchet MS', Verdana, Arial, Helvetica, sans-serif; font-size: 16px;">What can wash away my sin?</span></div>
<span style="background-color: white; font-family: 'Trebuchet MS', Verdana, Arial, Helvetica, sans-serif; font-size: 16px;"></span><br />
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<span style="background-color: white; font-family: 'Trebuchet MS', Verdana, Arial, Helvetica, sans-serif; font-size: 16px;">Nothing but the blood of Jesus;</span></div>
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<span style="background-color: white; font-family: 'Trebuchet MS', Verdana, Arial, Helvetica, sans-serif; font-size: 16px;">What can make me whole again?</span></div>
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Nothing but the blood of Jesus.</div>
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<span style="font-style: italic;">Refrain:</span></div>
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Oh! precious is the flow</div>
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That makes me white as snow;</div>
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No other fount I know,</div>
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Nothing but the blood of Jesus.</div>
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panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-65437410847880908802013-04-20T19:52:00.000-04:002013-04-21T20:18:47.567-04:00Celebration of Life<div class="separator" style="clear: both; text-align: center;">
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Life is so precious...celebrating this day and enjoying the ability to wrap our arms around our sweet girl, see her smile and enjoy another birthday. Thank you Lord!<br />
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Thank you for the calls, texts, cards, and gifts of love. A very special 'thank you' to Michelle's Cakery Bakery for a BEAUTIFUL one of a kind creation for our Warrior Princess. Reya LOVED her birthday cake and goodies, she especially loved that the side towers were individual push-up cake pops. You are amazing and so gifted. Thank you for making this day even more special!<br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com1tag:blogger.com,1999:blog-2563500795144171584.post-31803158702116164502013-03-26T15:49:00.000-04:002013-03-26T18:36:22.298-04:00Heroes Ball<div class="separator" style="clear: both; text-align: center;">
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Connor's Heroes is gearing up for their 3rd Annual Heroes Ball. Mireya will be participating this year as a Hero. We all know there are two heroes in the family, our 'Warrior Princess' Mireya and our 'Super Hero Donor Brother' Jalen that we are so proud of.<br />
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Each of the children worked with local Artists this week at the Glave Kocen Studio to create #teambolton masterpieces that will be a part of an amazing silent auction. It will be a great time to come together to raise funds and awareness for this an amazing cause, but also to celebrate with us. We have so much to be thankful for. Mireya is going to love getting all dolled up for the evening.<br />
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For additional information and tickets, please visit <a href="http://theheroesartball.org/2013-heroes/">Heroes Art Ball </a>. I personally invite each of you to join us. We would love to see as may familiar faces as are available that evening. Thank you for your love and support and support of those that have loved and supported us.<br />
<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-69912547032434055792013-03-16T12:46:00.000-04:002013-03-17T12:46:26.345-04:00A Bum Wheel<div class="separator" style="clear: both; text-align: center;">
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My week has consisted of being stretched out on a sofa with restricted movement, slipping in and out of a painkiller haze. So thankful for a husband who has taken 'extra wonderful' care of me, for my family and friends that have stepped in to be of assistance when needed. It's been rough.<br />
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I had hoped to never have to endure another knee surgery, but this past week I had my sixth knee surgery. Five scopes and an ACL reconstruction (attributed largely to my love of sports). This go round I had some meniscus tears to repair, along with some clean up to get done. That was the plan until they got in there and saw the complete madness that has been going on since my last surgery. It was a lot worse than originally expected and required a bit more to address. There were issues that will definitely affect the stability of my knee going forward and the things I'll be able to comfortably do. I have a follow-up appointment to discuss a lot of those points, but for now...it's quite a challenge.<br />
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I'm thankful for mobility and use of my limbs. Praying for a swift and speedy recovery. Also believing for a plan that allows me to remain active and maintain the quality and fulfillment of activities I enjoy. <br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-52804457244573155722013-03-14T15:45:00.000-04:002013-03-14T20:40:07.733-04:00Sharing & Caring<div class="separator" style="clear: both; text-align: center;">
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Writing..Sharing..Speaking and Connecting...several things I'm extremely passionate about. If I had to add a fifth, it would be 'Serving'....let's just add that because that is the essence of who I am. <br />
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I've enjoyed speaking on behalf of the many organizations we love and who have loved and supported us over these last two years (<a href="http://faithandfamilychurch.org/">Faith and Family Church</a>, <a href="http://www.askweb.org/">ASK</a>,<a href="http://connorsheros.org/"> Connor's Heroes Foundation</a>, <a href="http://www.starlight.org/">Starlight Foundation</a>, <a href="http://www.wish.org/">Make A Wish Foundation</a>,<a href="http://givekidstheworld.org/"> Give Kids the World</a>, <a href="http://childrensmiraclenetworkhospitals.org/">Children's Miracle Network</a> ,<a href="http://www.childrenshosp-richmond.org/">Children's Hospital of Richmond</a>) and the <a href="http://www.misschesterfield.org/">Miss Chesterfield Organization</a>.<br />
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I love sharing our story, the goodness of God and the collective beauty of the human spirit. As a result, I believe it has become a part of my mission and assignment to educate and bring awareness, participation and partnership to Organizations that are making a tremendous difference in the lives of others. <br />
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I've had the pleasure of partnering on several occasions over the last year with Children's Miracle Network and Children's Hospital of Richmond to speak with/to their local and national partners in an effort to allow these partners to 'see' and 'hear' the difference they are making. As a result other avenues and opportunities have been birthed or opened up. The Foundation contacted me last week to share they are launching a new group starting with #TeamBolton.<br />
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an excerpt from that message...<br />
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"<span style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 16px;">This spring, we will initiate a new group within our Foundation and we’d like to begin with you. Families with Heart will be a group of involved, passionate and motivated patient families who want to continue to be involved and support our efforts to help CHoR through event participation, story-telling and at times, speaking opportunities"</span><br />
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I was truly humbled to receive this. Don't ever underestimate the 'Power of One'...how far reaching one voice, one experience, or one decision can make or the impact/imprint it can have.<br />
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Ambassador.Champion.Advocate.Spokesperson.Supporter...stay tuned for more!<br />
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<br />panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-56181141505103997782013-03-12T15:28:00.000-04:002013-03-14T20:40:32.423-04:00Illness & Revelation<div class="separator" style="clear: both; text-align: center;">
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It's been so beautiful to witness Mireya living and enjoying life. There are days I'm overcome with emotion at some of the simplest discoveries.<br />
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We had the opportunity to hang out with some awesome families from clinic a few weeks ago to attend the Circus. The kids were looking forward to a special tour that was lined up for the afternoon, a dinner and then back to the Coliseum to enjoy the Circus.<br />
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The tour was amazing. We had the opportunity to spend one on one time with the head Clown in Charge, some of the featured animal acts and enjoy the allure and fabulosity of all things circus. It was really special to watch Asia, the elephant paint a lovely photo for the Connor's Heroes kids, but even more exciting to watch her gleefully gulp down her favorite treat (a whole loaf of bread).<br />
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We walked over to Gibson's Grill to enjoy the lovely fare they had set up for us. It was so funny to see the kids go for the high chairs (bar stools) at the bar and order an assortment of juices and sodas. The food was very tasty. Midway through dinner Mireya was dragging. She mentioned that her head and stomach were hurting. I felt her head and she seemed to be fairly warm. Hmmm...I've been out of the 'on edge over fever' for quite a while, so I did not have my thermometer on hand and surprisingly neither did any of the other Moms. I became concerned the more I watched her demeanor and activity change, but she absolutely did not want to leave the 'Greatest Show on Earth'. I decided to contact the First Aid area of the Coliseum to see if I could get here temperature taken. Low and behold a very nice Firefighter arrived within minutes to our location registering a 101.6 fever. After calling Peds Hemoc, we were instructed to bring Mireya to the Pediatric ER to be looked at and for counts. We decided to allow Jalen and Kinley to stay with the group and enjoy the show because ER visits are always so long. Mireya decided she wanted Daddy to stay with her in the ER. So thankful for technology which allowed me to return to the Coliseum, keep track of Mireya's status while Jalen and Makinley enjoyed the remainder of the show. Long after the Circus was over we were still in the ER making sure Mireya received the care and medications she needed for what appeared to be a viral infection. The greatest feeling was receiving her counts and seeing that they were right where they needed to be. Her white count was even elevated a bit, showing us that her bone marrow and body were doing exactly what they should when fighting against illness. Jalen was quite anxious when we arrived because he thought he was going to have to 'do something' again to help his sister. After hearing those counts, I looked at Jalen and gave him a 'high five' and a big hug...those SUPER cells are working beautifully. It was a long late night, we didn't get home until close to 1am.<br />
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Through what 'appeared' to be a setback, God showed us beautiful counts, a body on it's job and fighting for wellness. We're thankful this was something that could be easily addressed and happy for the revelation in the midst of it all. This is definitely a win for #TeamBolton.panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0tag:blogger.com,1999:blog-2563500795144171584.post-27953029027225987852013-02-19T21:01:00.001-05:002013-02-19T22:10:33.443-05:00Birthday Blessings<div class="separator" style="clear: both; text-align: center;">
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Back in December I received a message from a dear friend sharing how a local baker had heard our story and wanted to be a blessing to each of the children for their birthday. I was so touched that someone would be moved to do something so amazing for us.<br />
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Today is my sweet little Makinley's birthday. I was contacted last week by Michelle Wilson of <a href="http://www.michellescakerybakery.net/">Michelle's Cakery Bakery</a> for a run down on all things Kinley. At that moment it consisted of purple and princesses (specifically Snow White). Just seconds earlier, it was Ariel, wait maybe Aurora. I had no idea what to expect, but was blown away when Michelle and her Mom arrived with this beautiful cake, balloons galore and two beautiful purple gift bags. Tears rimmed my eyes and I just wanted to boo hoo big time. It felt like Publisher's Clearinghouse had just arrived and I was a major winner! The true prize was the 'priceless' smile on Makinley's face when she saw this beautiful creation. On top of it all Michelle pulled together a princess gift pack for Makinely, purchased everything we needed to complete a celebration (purple plasticware, plates, cups and a tablecloth) AND she made the most adorable purple heart shaped cake pops for Kinley to take to her preschool class. We elected to have a early celebration with my niece and nephew to take advantage of the day out of school yesterday.<br />
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Today we had second celebration full of birthday love with her class and family. At preschool, the kids actually make a cake during class to enjoy with the birthday boy or girl. There was major sugar overload going on this morning, so we decided to send the cake pops home with her classmates. They were so excited. Makinley has been celebrating all day long....we enjoyed cupcakes and another round of sweets and gifts this afternoon. <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2PlzdQudnDGrrQrjGCmobYxV76s6VPkEL1x6-3-_2B2OOcDAe8LIlMdDPMcsclSnLMWG_YM_QiCnxHCc9yeNG3voRfnIHkc5hsoUfO3dMc4TJS6mIMwvUzXCnx1psrWTWoHkKeMZ-4bWh/s1600/IMG_2993.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2PlzdQudnDGrrQrjGCmobYxV76s6VPkEL1x6-3-_2B2OOcDAe8LIlMdDPMcsclSnLMWG_YM_QiCnxHCc9yeNG3voRfnIHkc5hsoUfO3dMc4TJS6mIMwvUzXCnx1psrWTWoHkKeMZ-4bWh/s400/IMG_2993.JPG" width="400" /></a></div>
I can't believe how quickly time has flown and I'm extremely thankful for Michelle Wilson. She has an amazing story which started with making cakes for her own child who has major allergies, only able to eat a few key ingredients. That grew into making cakes and sweets for other children with allergies and eventually a full scale business was born (your gifts will make room for you). I love her heart and desire to share her gifts with others. This was really special for us. Please visit <a href="http://www.michellescakerybakery.net/">http://www.michellescakerybakery.net</a> and consider Michelle's Cakery Bakery for your next event. The cake and pops were delicious!<br />
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If you know of a family affected by childhood illness that does not reside in the Tri-City Area or Metro Area, visit <a href="http://www.icingsmiles.org/">Icing Smiles</a>. This is wonderful organization (with a host of licensed Bakers across the United States) making a difference in the lives of children affected by illness, one cake and smile at a time.<br />
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Happy Birthday Makinley! I'll never forget when Daddy and I discussed having you. I thought we were good (just having had your brother and sister), but Daddy wanted just one more. I told him I loved him enough to go there and suddenly we were there and then you were born. I'll never forget you coming into the world, sounding off like a little kitty cat with that sweet little cry. I remember thanking Daddy not long ago for lobbying for one more. I told him had he not been persistent in the campaign, we would be missing out on the total joy of you. Love you so much sweet girl!panamamahttp://www.blogger.com/profile/07929763608395445600noreply@blogger.com0