Tuesday, May 10, 2011

Yet Still I Rise

Anyone familiar with Yolanda Adam's "Yet Still I Rise" would agree it is a very appropriate song for such a time as this. If you've never heard it before, take a minute to Google or YouTube it...Yet Still I Rise..never to give up, never to give in, against all odds!

Yesterday was not the best day of information. Mireya had a few areas of petechiae on her mouth and she began complaining that her stomach hurt late in the evening last night. I took her in to the Pediatrician's office for a CBC (capilliary blood draw). The counts across the board are low. Her platelet count is down from 71k to 16k. When we were in the hospital last week, they wouldn't consider allowing us to be discharged unless the count was higher than 16k, so I mentally prepared myself to have to be re-admitted. Instead we were given some 'high level' criteria to keep an eye on that would require us to go back.

Mireya's white blood cell count is low, so it is imperative that we guard her as best we can from infection. Fever is one of the first indicators of possible infection, so any sign of a fever is definitely on the 'return' list where they would administer antibiotics intravenously. Any additional petechiae, bruising or bleeding would also necessitate us immediately going to the hospital. If the counts are lower, another transfusion would be given. We will be at the Hemoc office first thing Friday morning to get the complete findings from the biopsy report. In the meantime I need to place our Princess in a padded room with a helmet and straight jacket because her activity level needs to be zero. We are doing our best to minimize her activity, but she's an active 4-year old that just doesn't get it. Overall she appears to feel well, but we have noticed she is slowing down some. The pediatrician did share some snipets of information she received while speaking to the Doctors at Hemoc. Everyone is trying to get an understanding of what the underlying issue is, but we are going to wait for the full report before we get too anxious or amped about a word here or there.

The bible tells us 'Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your request be made know to God'. God knows it all and he is in control of it all. He is whispering in my ear Psalms 46:10, Be Still And Know I am God.

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