Saturday, September 15, 2012

Holding Steady

I Heart Bacon
We had favorable appointment to round out the week.  Reya's counts are holding steady.  We didn't have to receive GCSF and one of her immunosuppressant medications was dialed back.  Hopefully it will allow us to see what her body can do with less suppression in place.  The chimerism results showed a combination of cells, but Wonder Boy Jalen's were most prevalent.  This is an excellent sign.

Mireya is having a difficult time sleeping at night.  It's not uncommon to find her awake singing or wandering around in the wee hours of the morning.  This super night owl schedule causes her to be extremely tired throughout the day. We had this problem post transplant last year too. We're not certain if any of her meds are specifically creating an issue, but we'll bring it up when we're in clinic next week.  Reya's appetite is also a bit quirky. You never know how chemotherapy will affect the taste buds. Her all-time favs this week are hot dogs, bacon, frozen pancakes and butter crackers.  Reya has asked for these butter crackers as an appetizer, side dish and snack. At this rate, I may have to buy stock in Eggo, Oscar Meyer and Keebler.

Mireya is very happy to be home, she tell me at random points throughout the day how happy she is to be in her house, in her bed and with her family all together. Thank you so much for your continued prayers.  Please say an extra prayer for Mireya and her ability to rest at night. 


  1. we sure will....hope she has sweet dreams tonite!

  2. Sending love and strength your way. Christina