|New Birthday Celebration - 1 year ago|
Our expected timeline for the transplant has been delayed a little as we await insurance approvals and the scheduling of procedures for Jalen and Mireya. Mireya's count are holding pretty well. Her platelets are borderline for a transfusion and her hemoglobin is actually lower than expected, even though she received a transfusion last week. For now we'll monitor her closely and hopefully be able to hold off until our appointment next week for transfusions.
Please say a special prayer for Mireya, she has become a bit resistant about going to clinic. It took a lot to get her full cooperation this morning and she decided to let everyone near the corner of 11th and Marshall know all about her waning desire to be an active participant in the process. I stood amongst the gasps and stares wanting to shed my own tears...instead I scooped her up, hugged her tight and let her howl at the sun, all while trying to beat the countdown to the "Do Not Walk' sign. It's tough, but when the going get's tough, the tough get on their knees, pray and keep it moving. We don't have time to dwell in sorrow. It doesn't feel good, especially when there is nothing you can do as a parent to change the situation. We continue to hold on with faith. Regardless of what we see, and how it feels, God is working it out. He blessed us with a son that is a perfect match for his sister and although timing and medicine have seemingly fallen through, God is with us every step of the way and we are working our way to victory.