Still Tracking

Mireya's counts took a small dip, but are still in the process of stabilizing.  Over the last several months, Reya's white count has fluctuated anywhere between 1.5-4.6.  Having her on the board at 1.5 at this point is promising.  Her neutrophil count remains above 1000 which is awesome.  Neutrophils are the cells that fight infection.  Reya's neutrophil count has not been above 800 since about January, so we are very excited about where she is right now.  We're still on track to possibly be released early next week.  We'll have a better idea after receiving her labs results tonight.  It seems to be happening so quick, but we believe her body's familiarity with Jalen Wonder Boy Bolton's cells is definitely a factor.  Jalen and Makinley miss Reya being home and they definitely miss Mommy and Daddy when either of us is away at the hospital for extended days.  We banked on approximately 6 weeks of Splitsville, but are really looking forward to being back together at home as a family unit. The same parameters and precautions would apply at home, so to manage Reya's care there would really be nice.  Once we're discharged, whenever that is, we'll still be in clinic 3-4 times a week for monitoring and follow-up. 

Reya had a nosebleed today.  It wasn't excessive, but with low platelets you worry about bleeding and the body's inability to clot successfully.  Her hemoglobin was also low, as a result she received blood and platelet transfusions.  She's had a few out of the ordinary symptoms with the last two platelet transfusions, so the Medical Team decided to pre-medicate her to help diminish any issues. Overall Mireya continues to do well.  Her appetite is still hit or miss, unless it's bacon or specifically something prepared from home.  She is the self-proclaimed 'Bacon Princess', eating about 6-7 pieces each morning.  The group Social Worker was joking that every time she comes to the floor it smells like bacon.  The Galley staff member told me the majority of the patients on the Unit also love and request bacon, likely due to the saltiness. Mireya is definitely craving salty...tonight she asked for club crackers, saltine crackers and pretzels.  We won't put a lot of stock in the request or stock up on those items, because it could all change by tomorrow morning.  Chemotherapy has that affect on the taste buds. 

We're trusting the Lord in every area of this process and believing for steady increase.  Prayers are going up all over the world on Mireya's behalf.  God hears every prayer, and continues to assure us he is present and working it out. 

Best News Ever

I woke up to a very grumpy girl (a grumpapottamus), who has boycotted everything this morning except, bacon and cinnamon toast crunch.  We're having our moment of silence right now.  We'll resume our previously scheduled program of love and harmony shortly.

In the midst of all the madness, I just heard some of the best news ever....Reya's body has welcomed my boys cells back with 'Open Arms' (love Journey) and her white count increased overnight from .4 to 2.1. Her neutrophils went from 400 to over 1800.  Amazing!!! There is a possibility that we can go home by early next week. Reya is being transitioned off her IV meds to PO meds (by mouth).  We expected 4-6 weeks, but look at God!!!  The docs tried to reign in the excitement with the customary 'knock on wood' or 'recently we told a few patients to prepare to go home, and everything fell apart', but I'm banking on nothing but up from here. Thank you Lord!!

Mireya's platelet and hemoglobin counts are down.  We hope to see a rise in those numbers and avoid transfusions. We're believing Mireya's counts will continue to increase.  We're also specifically praying about GVHD (Graft vs. Host Disease), that there will be no rejection as Jalen's (SUPER) cells take up residence in Reya's body.  For now, awesome news and an excellent start to a unfolding process. Thank you for continuing to pray for the success of this transplant.

Rejoice in the Lord always, again I say Rejoice. Phillipians 4:4