Showing posts with label Day 100. Show all posts
Showing posts with label Day 100. Show all posts

Wednesday, November 28, 2012

Another 100 Days


Praise the Lord....we've reached another major milestone, our second 100 days!!  We've been on edge for the last week or so because Mireya's had the sniffles and a scant cough, but we were happy to see good counts at our last appointment.  Day 100 is significant in ruling out the probability of several issues that could sideline our progress and continued success. As a result, we've been able to eliminate a few more medications, and Mireya can stop wearing a mask, unless in a heavily populated area.  It's cold and yuck season, so we'll definitely use wisdom in all situations.  Wearing a mask has been a sticking point with Mireya, so it's good to be a little less restricted when out.

The frequency of our appointments will also change.  Being in the clinic less throughout the week, will be nice, but having our appointments more stretched out as we dial back Reya's Tacrolimus has us on high alert.  The process of reducing her tac meds earlier this year is when we began to see a decline in her counts and failure of her graft.  Thankfully we are on our third week of the weaning her Tac and her counts are holding relatively steady.  Continue to pray with and for us, specifically against illness and zero issues as she comes of the Tacrolimus.  100 days down and several more months to go.  Each day moves us closer to victory over this illness.

Phillipians 4:4 Rejoice in the Lord always, again I say Rejoice.

Deuteronomy 20:4 For the Lord your God is the one who goes with you to fight for you against your enemies to give you victory.  




Saturday, October 6, 2012

We're on the Move

Mireya had a great week!  She's feeling good, looking good and her counts are great.  We had our first series of PAL testing in school and she did amazingly.  We're really pleased to have a full week of great labs.  Next week we'll determine where we are with chimerism.  The days are ticking away to Day 100.  We're definitely looking forward to maneuvering out of isolation.  We're on the move in the right direction. Thank you Lord for the increase in Reya's counts and for continuing to strengthen her body.