Reya's appointment today only lasted 3.5 hours. Her counts came up a bit since Friday but her white count is still lagging along with her magnesium. The dosage on one of her anti-rejection medications has been changed. Sometimes when this medication is given at certain levels, it can be prohibitive to the white count. Hopefully we'll begin to see her white count increase a bit more.
A Medical Student started on the floor today shadowing our Physician. Mireya was his first pediatric patient and he was given the task of a full physical and exam. We were on our second run of Barbie's 'The Nutcracker' and I wanted to bang my head against the wall in dread. We've watched this movie at every appointment over the last week for a total of 5 times x 1.5 hours (give me strength). We had time to burn waiting for our lab results and it was a welcome change of pace and entertainment. Now you only get to pull the 'this is my first day, first patient' card once, but, we finally got through it and overall he did a good job and had excellent bedside mannerisms. I think he'll do great.
Reya's platelets have started to increase which is awesome. They've not been higher than about 15k on their own, so we're doing a little Arsenio Hall fist pump over here @ 31k. It will really be great when all three counts are on the rise unassisted by transfusions or medication.
One of our new favorite times of the day is 7pm. That kicks off the Bolton Evening Part-tay on the deck. It's time to light the citronella, get the bubbles machine blowing and kick up the tunes and just chill out. Last night we sat out there well into the night and shut it down with a Family Salsa dance. Jalen and I have decided we'll be hitting the town for a Mother/Son Dance. The kids love to dance and we are known to have dance parties all throughout the week, but they think it's really cool to dance at night under the stars with 'fire' all around us. It's the simple things....continuing not to sweat the small stuff and savoring these moments together.
Excuse me...Did I hear that a part-tay is going on...with bubbles...and I was not invited!!!
ReplyDeleteI can hardly wait for Mireya's counts to go up so I can join the Bolton Family throwdown!
although I am usually just a voyer on your blog and FB in general ( well.... I usually just creep on my son) , today I feel compelled to leave a message. I want you to know what a blessing your Job-like faith has been to me and probably countless others. I didn't realize just how much until recently during my Friday Bible study, as we were discussing how and if we could get thru a medical life threatening crisis involving our children with our faith in tact, then I tried to tell a little of your story. I barely managed to get out a few words before I was bawling like a baby but I need my friends to know that it was possible. I want you to know how beautiful your testimony is and how greatful I am to be able to pray for your family.You make me want to be a better mom, wife and most of all a better Christian. After our tearfull discussion we all decided that we would not be praying for God to stregnthen us in this area because as you know when you do that God always provides ample opportunity for growth..haha.You are my Job-ette. Thank You for blessing my undeserving self. Karen Kline
ReplyDeleteKaren what a beautiful message. THANK YOU!!! Thank you for keeping up with Mireya's Journey and for your words of encouragement and support. I appreciate your prayers and I'm thankful that you took the time to leave this awesome and uplifting message. Much love and blessings to you!!!
ReplyDeleteKyle...we've gotten rained out the last two nights, but trust me when these counts go up we will be celebrating with everyone!!! Thanks for the love.
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