Shifting the Atmosphere

Doing Homework in Clinic

Mireya has had a couple of really good appointments.  Her counts are fluctuating between good and very impressive.  She's been placed on a schedule to wean her off the immunosuppresion meds.  This has us a ...

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Full Days

Today was a big day.  Mireya had clinic, which was full of shifts and turns, but today was also her first day of school with her teacher.  Clinic we won't spend to much time on, we'll just give it to the Lord and continue to trust him to ...

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Color Run Fun

My big girl had some fun in RVA this weekend at the Color Run, dubbed the Happiest 5K on the Planet.  After visiting the website and seeing all the awesome pictures taken, I definitely want to participate in this event when it comes back to ...

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Holding Steady

I Heart Bacon

We had favorable appointment to round out the week.  Reya's counts are holding steady.  We didn't have to receive GCSF and one of her immunosuppressant medications was dialed back.  Hopefully it will allow us to see ...

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Musculoskeletal Madness

Jalen came off the bus looking like he had dislocated his shoulder.  He said he was not in pain, but said that something happened when he reached down for his scissors while sitting at his desk at school.  These are the type of issues ...

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Life & Monkeys

Our last appointment was a positive one.  The GCSF has helped to increase Mireya's counts.  Her magnesium still lingers, so we'll up the frequency of the IV Mag at home.  Mireya has also developed a slight on again off again ...

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Adjustments

Mireya's tacrilimus level is still elevated.  Testing this level allows us to determine how the medication is being absorbed in her body and if it remains below the toxic level.  There are several signs of Tacrolimus toxicity, the most ...

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Consumed

It's been a weekend filled with sadness. Cancer has taken the lives of two very special people.  There are no words for the heartache and grief we feel.  We're grateful to have known a vibrant, warm and loving woman & mother who ...

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@Last

Ready to Go Home

Riding & Designing

Home Sweet Home

Hmm it was a toss up between Freedom (George Michael), or a line from Peebles, 'I'm out the door babe, there's other fish for us to see' (#TeamBolton revamp).  Blame it on a dozen SongPop ...

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