Fun Times with Connor's Heroes

 We had a great time with Connor's Heroes at the Winter Wonderland and Holiday Ball event.  Connor's Heroes is one of our favorite organizations that is doing fabulous things in the community and for families of children with cancer and ...

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Fright Night

As if there is not enough excitement in our lives, we had a very frightful experience last night as we watched Paris go through an allergic reaction to a something she ate.  Paris has no known allergies to foods or medicines, but immediately ...

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Post 100 Days

Our appointment this week was very good.  We were really getting antsy about what Mireya's body has been doing since our last appointment.  We were happy to find her counts are holding relatively well.  We're continuing to wean her ...

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Prayers for Newtown

I've sat here most of the day with a pit in my stomach as the ruthlessness of these events has unfolded.  So much is going on in our world that is out of control.  My heart is broken and aching for the families of the children and adults ...

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Make A Wish Radio-thon

#TeamBolton had a great time hanging out with Melissa Chase @ 103.7 (The River) for the Make-A-Wish Radio-thon.  Mireya is a Make-A-Wish kid and our trip was one we will treasure forever. We loved visiting the station and sharing our story, ...

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Supporting the Cause - 36 Hours for Kids

 #TeamBolton had an amazing time with Q94's Kash and Lite 98's Kat Simons for the 36 Hours for Kids Radio-thon. Originally I thought the interviews would be simulcast on both stations, but we actually ended up doing two separate interviews. ...

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Another 100 Days

Praise the Lord....we've reached another major milestone, our second 100 days!!  We've been on edge for the last week or so because Mireya's had the sniffles and a scant cough, but we were happy to see good counts at our last appointment. ...

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In the News (Love & Kindness)

#TeamBolton was honored last year by a dear friend and NBC12's 'Acts of Kindness'.  Recently we spent time with Sabrina Squire (Local NBC12 Anchorwoman) to discuss all that has transpired since the original piece was aired.  We are ...

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Sick and Shut-Out

Madness has attempted to infiltrate the camp.  At this point, we don't have time for illness or o-sis (as in diagnosis) in the #TeamBolton household.  Any type of illness would be very damaging to the progress Mireya's body is making. ...

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Emily's On a Mission ~ We All Can Help

Meet our dear, sweet little friend Emily Hubbel.  Many of you may remember previous posts I've shared about Emily and Mireya.  The girls met on the Bone Marrow Unit last summer during their transplants.  Reya and Emily both love ...

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Not Forgotten

It's so easy to slip off the scene when so much is going on in life...your life and the lives of everyone around you.  Sometimes you feel like your hovering just above the breaking point.  That thread is unraveling, the nerve is giving ...

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Higher Higher

Over the last few weeks, Reya has been putting out the best counts we've seen in over a year!  We're still remaining very watchful over delicate skin issues, but overall Mireya is tracking well. She had her first pentamadine treatment since ...

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We're on the Move

Mireya had a great week!  She's feeling good, looking good and her counts are great.  We had our first series of PAL testing in school and she did amazingly.  We're really pleased to have a full week of great labs.  Next week ...

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Round & Round

The world of counts, labs, cells and test is ever evolving. Mireya's counts have been good, her chimerism ratios are getting tricky, but we're still believing and trusting God.  It was noted in our last appointment that Mireya's skin ...

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Shifting the Atmosphere

Doing Homework in Clinic

Mireya has had a couple of really good appointments.  Her counts are fluctuating between good and very impressive.  She's been placed on a schedule to wean her off the immunosuppresion meds.  This has us a ...

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Full Days

Today was a big day.  Mireya had clinic, which was full of shifts and turns, but today was also her first day of school with her teacher.  Clinic we won't spend to much time on, we'll just give it to the Lord and continue to trust him to ...

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Color Run Fun

My big girl had some fun in RVA this weekend at the Color Run, dubbed the Happiest 5K on the Planet.  After visiting the website and seeing all the awesome pictures taken, I definitely want to participate in this event when it comes back to ...

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Holding Steady

I Heart Bacon

We had favorable appointment to round out the week.  Reya's counts are holding steady.  We didn't have to receive GCSF and one of her immunosuppressant medications was dialed back.  Hopefully it will allow us to see ...

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Musculoskeletal Madness

Jalen came off the bus looking like he had dislocated his shoulder.  He said he was not in pain, but said that something happened when he reached down for his scissors while sitting at his desk at school.  These are the type of issues ...

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Life & Monkeys

Our last appointment was a positive one.  The GCSF has helped to increase Mireya's counts.  Her magnesium still lingers, so we'll up the frequency of the IV Mag at home.  Mireya has also developed a slight on again off again ...

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Adjustments

Mireya's tacrilimus level is still elevated.  Testing this level allows us to determine how the medication is being absorbed in her body and if it remains below the toxic level.  There are several signs of Tacrolimus toxicity, the most ...

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Consumed

It's been a weekend filled with sadness. Cancer has taken the lives of two very special people.  There are no words for the heartache and grief we feel.  We're grateful to have known a vibrant, warm and loving woman & mother who ...

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@Last

Ready to Go Home

Riding & Designing

Home Sweet Home

Hmm it was a toss up between Freedom (George Michael), or a line from Peebles, 'I'm out the door babe, there's other fish for us to see' (#TeamBolton revamp).  Blame it on a dozen SongPop ...

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