Mireya's Progress

Mireya has been doing fabulously.  Counts continue to improve and her overall health is increasing.  Post 100 days we have been able to eliminate wearing the mask unless in a very heavily populated space.  Reya  was so delighted by this.  She just giggled with excitement at the prospect that she could go outside and play without a mask on.  We were walking to the bus stop to pick up Jalen and she said 'Wow' I can 'feel' the air on my nose and mouth.  My heart wept in that moment.  The simple pleasures of life that we take for granted.  Reya's hair is growing back and it is beautiful.  We are in clinic every two weeks which is a blessing and she still receives her monthly treatment to help prevent pneumonia, which she has had about once each month, so I'm not sure how well that is working, but I'm happy we've been able to identify and treat each case of pneumonia without further issue or concern.

We still have the Hickman Catheter in for blood work and to administer one of her meds via the line.  It will be so awesome when we can get that out.  She'll be super excited to do two things she misses very much...take a bath and go swimming and best of all not have to deal with weekly dressing changes.  We still have several months of treatment to go through, but overall we are tracking beautifully.  Thank you for continuing to keep us in your thoughts, prayers and for checking on Mireya's progress.