It was a long night. I had trouble getting to sleep and once I finally did Reya jumped me. She left her big spacious bed to come cramp up the situation on my not as comfortable pull out chair. Good thing she is not as big as a minute. I on the other hand had to overindulge my abs and core to hang on the edge of the bed. All for the comfort of the Princess. The headaches and stomach aches returned overnight, but she was able for the most part to sleep through the pain. Early morning rounds felt like they would never get here. Our normally upbeat Pediatric Physician came in missing a few of his beats. The report was not favorable, all of Reya's counts went down. So this afternoon we will be having a bone marrow biopsy done. My sails are fighting to stay up. Our faith in God continues to carry us. We take the bad (or unknown) with the good and keep pressing, knowing that it ALL matters to God.
Looks like I will be fasting with Mireya today. I sure wish they had told me she couldn't eat or drink after a certain hour. Her appetite has been hit or miss, but I would have given her a few extra things I know she would have gobbled down before the clock struck midnight. So now I'm hiding the stash of 'this and that' I have in the room...out of sight, out of mind (as my stomach grumbles). God is so awesome! She has yet to ask for anything to eat or drink, instead she just woke up wanting to put on her princess garb and play with her new 'Dora's Royal Adventure' block set.
We are scheduled for the biopsy at 1pm this afternoon. She will have to be put to sleep for this procedure. The Dr. will have to take a small bone chip sample as well as draw some of her bone marrow by needle from back of her hip. She barely has a hip...yikes. No stitches required, a little Tylenol for the pain and I'm sure if they put a Princess Band-Aid on the spot, she'll barely feel the projected 'moderate' pain associated with it. Funny how a band-aid can instantly cure an ouchie (coupled with a 'let Mommy/Daddy kiss it').
From there test and reports will be done and prayerfully we will be closer to unveiling the cause of all of this. Should the platelet count increase we can go home until all the results from this procedure are completed. It usually take about 5 days. If her counts don't increase we'll remain here until a treatment plan can be initiated. Continuing to pray and believing for the greatest report in the end. More to come.....
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I'm still praying for you and the Princess.
ReplyDeleteOh wow Venus...I'm praying for you. I'm so glad you have a solid family and friends around you right now. I know you will lean on them and on your faith. I'm so sorry you are going through this. We are praying and praying...with love,
ReplyDeletecolleen
Venus, your family is continually in my thoughts and I pray that you all get a favorable report. Please keep us posted and let us know if there is anything at all that you need.
ReplyDeleteThank you all so much!!!
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