Scholastic Endeavors

Yesterday was Orientation for Jalen and Mireya. We've been on the fence about how to approach and proceed with plans for Mireya and school.  She is definitely ready, but we want to do what is best for her considering treatment, isolation and ...

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Throw Your Hands Up

I Will Watch Over and Protect Her

From the Beginning We've Been Side by Side

We're raising the roof AND praising God! Reya's counts were through the raised roof today.  The white count doubled.  Her platelets and hemoglobin also ...

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Ups, Downs & Changes

Look Mom...No Lines

Three Amigos

Mireya's counts have been through a series of highs and lows over the last few days.  We saw high numbers over the weekend that were seemly to good to be true so early, but the team is not concerned.  ...

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Still Tracking

Mireya's counts took a small dip, but are still in the process of stabilizing.  Over the last several months, Reya's white count has fluctuated anywhere between 1.5-4.6.  Having her on the board at 1.5 at this point is promising.  ...

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Best News Ever

I woke up to a very grumpy girl (a grumpapottamus), who has boycotted everything this morning except, bacon and cinnamon toast crunch.  We're having our moment of silence right now.  We'll resume our previously scheduled program of love ...

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Fun Filled Days

Mireya's had a full day of activities and fun. The Art Teacher, Ms. Gretchen came by, she and Reya painted several pictures and made all sorts of things with playdough.  Ms. Fran, from Connors Heroes stopped by to check on Jalen's status ...

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The Grind

Mireya's days are filled with numerous checks and balances.  Every morning we are greeted by our Care Partner to check Reya's weight, temperature and blood pressure as well as saturation of her hemoglobin with the pulse ox.  Next up is ...

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Praying and Waiting

Jalen and Mireya are doing well respectively.  The bandages on Jalen's legs have been removed.  He is very sore, but is making the necessary adjustments and getting around well. Mireya is at Day +4 since the transplant.  The Medical ...

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If At First You Don't Succeed

One of Our Favorite People Stopped By

try, try again.  Day 2 of Apheresis started off with a bit of uncertainty.  There was concern because Jalen's white cell count dropped significantly from the day before.  Although the white count ...

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One Step Closer

Apheresis Machine

Jalen was a Super Hero today.  I will remember this day forever.  Despite it all he pressed through his fear and did what only his body is designed 100% to do.  We arrived at the hospital, got registered and went ...

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Gearing Up

Jalen did fabulous today in clinic.  The i-port has made these last few visits a breeze and has boosted his confidence in the process and his trust in those overseeing his care.  After he received his injection, he threw his hands up in ...

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Let's Get It Started

Jalen started his conditioning regimen to increase his cell counts in preparation for their debut later this week.  He's scheduled to received these injections daily until Thursday.  The Medical Team believes Jalen has Gilbert Syndrome ...

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Moving Forward

This is our last week of controlled freedom.  We've been at the hospital about four times a week doing scans, exams and prep work for Jalen and Mireya.  Mireya will be admitted to the hospital next week to begin her chemo therapy and ...

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