Second Time Around

This weeks appointment was a tough one.  We've been holding out for Mireya's body to make a turn around, but an additional chimerism test and the downward trending of her counts show her graft is failing. We were hoping to avoid a second ...

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Teamwork Makes the Dream Work

Mireya was discharged from the hospital over the weekend.  There was so much going on 'in the midst' of this hospitalization.  We received a call from the Head of Peds Hemoc to discuss Mireya's positive blood cultures and the medical ...

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Midnight Fiasco

Mireya is doing well.  The results of her blood culture will take at least 48 hours.  She continues to get rounds of fluids and antibiotics.  In the past, Mireya has had a reaction to one of the antibiotics and requires pre-treatment ...

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We're Back

Our appointment this week was disappointing. Reya is on the line for receiving platelets and a blood transfusion.  The decision was made to hold off on any transfusions, largely based on the possibility of needing to repeat the transplant via ...

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Father's Day Scuba Fun

It's been a minute since Quentin and I have had the pleasure of both getting out to do something together.  I read a post about a Discover Scuba session and decided it would be a really fun activity to do on Father's Day.  Our intere...

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The Heart of The Children

So much has transpired in the last few months.  The love and support of many is still so amazing.  Over this 11 month period, Mireya has been an exemplary patient and a true fighter.  She presses through with a resilience and a flow ...

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Holding Pattern

Mireya's visit this week showed a small improvement in one area and a steep decline in another.  It's hard to gauge progress while fighting this infection.  We're in a holding pattern for another week to see how Reya's body recovers. ...

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Despite it All

Sometimes it doesn't matter what life throws your way.  Remember who you serve, who stands beside you and keep smiling.  So thankful for my husband.  Through the ups and downs, we have one another and God's got us, so we continue to smile and give him praise despite it all.  

Off to the Ball

We had the joy of attending the 2nd Annual Masquerade Ball for the children and families of ASK.  I had not planned to attend the ball (my glass slippers had put in enough miles throughout the week), but Princess Mireya was adamant she ...

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Home on the Range

Three & 1 @ Hospital

Mireya was discharged from the hosptial this weekend.  The bacteria growing on her culture was identified as a type of influenza that has not been commonly seen in about five to ten years.  We were sent home with ...

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Challenging Week

Mireya was not feeling her best earlier this week.  Her energy level was low and all she wanted to do was rest. I took her temperature and it was at 99.3.  Not high enough for major concern, but something to keep an eye on.  I made a ...

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Tea at The Jefferson

Last weekend the Ms. Chesterfield Princesses spent time with Ms. Jacquelyn Thomas (The Etiquette & Protocol School) for a Etiquette Workshop. I wasn't certain Mireya would be able to attend because of  health challenges earlier in the ...

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A Day of Support for CMN

The Bolton Family was contacted to participate as 'Celebrity Baggers' at a local Walmart to support the Children's Miracle Network.  Many of you remember we participated in the Radio-Thon for Children's Hospital of Richmond last year. ...

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