Sometimes You Have to Cry Out

"Be strong and of good courage, do not fear nor be afraid of them; for the LORD your God, He is the One who goes with you. He will not leave you nor forsake you." (Dueteronomy 31:6)

Thank you Lord for your love and for your presence. Help me to be ...

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The Time is Drawing Near

It's been a challenging few days. We got a call from the Transplant Unit a few hours before our appointment to notify us that we are scheduled to be admitted to the hospital on Friday to begin the preliminary workup for the BMT. It felt really odd ...

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Happy Days Are Here Again

It's hard to describe how wonderful it has been to be at home with everyone playing and laughing, even fussing and crying. I've caught myself many times over the last week relishing moments where I'm walking around my house doing nothing more than ...

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In the Queue

Mireya's transplant was originally scheduled for yesterday, but has been postponed until next week. She was in the clinic yesterday and had to get both blood and platelet transfusions. It was a very long day. She'll have another checkup on Monday ...

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Throw Me A Lifeline

SOS...I think I'm drowning and I don't know it. Most women are key at multi-tasking, managing and maneuvering it all. I did it in the corporate world and I'm the head chick in charge in my home, but this diagnosis has changed and shifted my power. ...

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There's No Place Like Home

Dorothy had to endure quite a journey before clicking those heels and returning home. It's been a long 18 days and word on the street is we get to go home today. No need to click the heels, just sign the slip and get me out of here. Mireya is re...

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Power in Prayer

It has been difficult to get to church over these last several weeks. We've tried to get to bible study as our schedule has allowed, but since Mireya has been hospitalized that has also become a challenge. I was so excited to get to Corporate ...

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Devising a Plan - Help Wanted

I've been making a mental note of every time someone has said 'what do you need' or ' give me a call' and 'let us know if you need something'. My reality is that very soon we will be needing to coordinate many things. I don't realistically know ho...

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Quick Update

Mireya's appendectomy was a success. Her surgery time got bumped a few times due to a few emergencies, but she did great. They were able to successfully remove her appendix with no issues. Jalen had his work up today and as expected it was a ...

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New Developments

Mireya's fever has persisted for the last few days with little indication as to what the cause could be. The Drs. ordered a CT scan of her chest and lungs to rule out any underlying infections that may have gone undetected. The scan shows she has ...

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Sighs & Smiles

We have been very excited at the prospect of going home. Mireya has been without fever since late Sunday evening. The team took her off the meds and wanted to observe her for at least 24 hours before releasing her. It's been eleven days and we want ...

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Choices and Decisions

Mireya's health has declined and due to the severe nature of her condition, it is imperative that we make a decision on the next steps for her care. We've been talking about the options of the Autoimmune Suppressive Therapy and the Bone Marrow ...

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Blessings and Support

We have had the opportunity to enjoy several programs and initiatives of Connor's Heroes and ASK. Connor's Heroes is on a mission to build a community of heroes to ease the burden of cancer today and help to find a cure for tomorrow. They provide ...

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Back and Forth

Cameo sang it best (back, back and forth and forth), Arnold simply stated 'I'll Be Back', the folks in the clinic smiled and said 'Welcome Back' and just like that 'we're back' at the hospital with a neutropenic fever. Perhaps my prayer should have ...

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Houston - We Have A Match

We received a call tonight from our Hemoc Dr. informing us that Jalen is a 100% donor match for Mireya. Words cannot express our joy! God is so good and so faithful! It is hard to translate my excitement and elation across this page, but imagine my ...

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Kings Dominion or Busch Gardens?

It's been years since I've been to Busch Gardens. I have friends that love BG and go there every year. We usually purchase Kings Dominion Season Passes. I really don't ride roller coasters or many other rides for that matter. I have this 'motion' ...

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So Close, but No Enchilada

Mireya remained fever free overnight. Her white and hemoglobin counts also increased. The platelet count remains high following the transfusion yesterday which is really good. We had a bit of an issue when the nurse came to draw her culture. She ...

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A Glimpse of Goodness

Mireya managed to rest well overnight and has been without fever since late last night. A victory in the midst of it all. She has a fair amount of petechiae in her mouth and also some new areas on her neck. Her counts are all extremely low today. ...

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Cuatro Dias

Day Four at the hospital and this fever just won't let up. Reya cannot be released until she is fever free for at least 24 hours. Her fever continues to fluctuate between 99.0-103.6. The fever is at its lowest following a dose of Tylenol. She did ...

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Diagnosis & Prognosis

The 'osis' is Aplastic Anemia. We were holding out that it could be something else, but all of the testing has eliminated assumptions of whether or not it's non-classic ITP or another type of blood disorder. We remain prayerful that her body has ...

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Be Careful What You Ask For

I was having a bit of banter with my sister yesterday and telling her that I needed a Road Trip. Well I imagined quite a different journey, but I hopped on the highway this morning, hit a few tolls and pulled up to the Pediatric E/R. Mireya had a ...

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